Episodes

  • A Day in the Sun for Childhood Brain Cancer: The Survivors, The Doctor, the Book

    A Day in the Sun for Childhood Brain Cancer: The Survivors, The Doctor, the Book
    Jul 26 2024
    Today's interview features childhood brain cancer survivors Tori Moreno (DIPG) and Michael Keller (Astrocytoma G3), both having received treatment at the Burzynski Clinic in Houston, TX over 2 decades ago. As long-term survivors, they tell of their early memories and shared triumphs of enjoying, for all practical purposes, normal and healthy lives with a special fondness for "Dr. B", including Michael Keller's mom Christine who was helpful to detail their experiences as Michael was just a baby when diagnosed. A controversial doctor with a controversial therapy, Dr. Burzynski represents a sort of enigma of modern research science: a promising treatment with no development support, paired with the deadliest of diseases for our most vulnerable of citizens, childhood brain cancer. Dean and Wendy Fachon join us to further explain the kinds of obstacles with which a young person and their family are confronted when attempting to navigate a pathway to desired treatment amid very few options, as they did with their late son, Neil. Their recently published book of these long, arduous but light-filled adventures, "DIPG", can be found at www.dipgbook.com.
    Show More Show Less
    58 mins
  • Intuitive Coach Tiffany Curran Shares Personal Story of Survival

    Intuitive Coach Tiffany Curran Shares Personal Story of Survival
    Jan 19 2024
    Tiffany Rose Curran shares her childhood cancer journey with us, of 2-time cancer survivor Keelie Grace Curran, her daughter who was first diagnosed at 3 years old with leukemia. Tiffany is an intuitive life coach with training in several energetic healing modalities, and is a graphic artist and also a singer/songwriter. She shares her personal journey with a rich storytelling gift and greatness of heart and hope that lifts the spirit. You can learn more about Tiffany's work at intuitivetiffanyrose.com.
    Show More Show Less
    59 mins
  • An Invitation to Write, with Susan Lataille and Wendy Fachon

    An Invitation to Write, with Susan Lataille and Wendy Fachon
    Oct 27 2023
    Both Susan Lataille and Wendy Fachon have each endured the tragic loss of their sons and continue to demonstrate the dignity, love, and healing they have found through the shared process of writing. Both coming to us today from Rhode Island, Susan Lataille is a Certified Master Grief Coach who helps individuals who are grieving the loss of a loved one. It took her years to come to a place of acceptance of her own loss, diving head on into sharing her story and then helping others share theirs in her anthology series called “Shining a Light on Grief.” She has been able to guide others in writing their stories to feel lighter, find a new sense of peace and happiness, opening up to life's new possibilities. Wendy Fachon is the Host of Story Walking Radio Hour; she writes for the Natural Awakenings publication and is an environmental educator for the Empowerment Factory, among other outlets. She as been a participating author in the Shining a Light on Grief series and so brings her unique testimony to the effectiveness and power of that process to our audience.
    Show More Show Less
    57 mins
  • Marcelo Ortigao: CDMRP IDEA and IMPACT Funding Opportunities for Pediatric Cancer

    Marcelo Ortigao: CDMRP IDEA and IMPACT Funding Opportunities for Pediatric Cancer
    Oct 6 2023
    Before devoting his efforts to advocacy for pediatric cancer research upon the diagnosis and loss of his daughter Juliana to DIPG, Marcelo Ortigao served as an associate professor of Preventive Medicine and Emerging Infectious Diseases at the Uniformed Services University (USU), in Bethesda, MD. He is now the Medical and Science Advisor to DIPG Advocacy Group, and also a supporter and advisor to the Marc Jr Foundation in Denver, CO. Dr Ortigao’s work has focused on the epidemiology and immune-biology of vector-borne diseases with specific interests on vector-pathogen-vertebrate host interactions, vector competence and innate immunity, ecology, distribution, and vector control methodologies. Rather than buying into the "rare" excuse for lack of solutions for pediatric diseases, he maintains unequivocally from his experience as a medical researcher that childhood cancers like DIPG (diffuse intrinsic pontine glioma) are neglected diseases, full stop. Today's podcast includes descriptions of certain government funding mechanisms now being more open to pediatric designation. His story has been impactfully presented by the Portrait Project: https://portraitproject.muralhealth.com/stories/marcelo-ortigao-part-ii
    Show More Show Less
    58 mins
  • The Inaugural Childhood Cancer Prevention Symposium

    The Inaugural Childhood Cancer Prevention Symposium
    Sep 29 2023
    This historic event, truly a first for a focus on cancer prevention for children, takes place in Washington DC on October 25-26 of 2023. Jonathan Agin, Executive Director of Prep4Gold, Joe McDonough with the Andrew McDonough B+ Foundation and Simon Davies, Executive Director of Teen Cancer America share details of this highly anticipated event, which include a assembly of top experts in oncology and pediatric oncology from around the world, and Keynote Speaker Azra Raza from Columbia University, author of "The First Cell," and the human cost of pursuing cancer to the last. Topics of discussion include environmental exposures and childhood cancer risk, genetics and early detection, defining prevention and parental guilt, and preventing adverse outcomes and late effects. Registration is free for families and advocates.
    Show More Show Less
    1 hr and 1 min
  • The People's Voice in Healthcare: Matthew Zachary

    The People's Voice in Healthcare: Matthew Zachary
    Aug 11 2023
    Matthew Zachary is an American advocate and one of the health care industry's most respected, influential, and visionary voices with a 25+ year career in entertainment, advertising, marketing, nonprofit, digital health, public policy, life sciences, and broadcast media. Also the founder and CEO of the non-profit, Stupid Cancer, and the young adult cancer movement, Matthew shares with us his personal story of discovering, enduring, and eventually beating cancer, and also his sought-after insight into the norms and conventions of the medical research investment culture, which Matthew helps cancer organizations and patients to navigate. Also co-founder of the documentary podcast studio OffScrip Health, Matthew hosts the popular podcast "Out of Patients, with Matthew Zachary," A Top-10 healthcare podcast.
    Show More Show Less
    58 mins
  • Live with Paul Miller: Advocacy and Activism Then, and Now

    Live with Paul Miller: Advocacy and Activism Then, and Now
    Jul 14 2023
    Paul Miller, a dedicated advocate for children with cancer for the past 2 decades, joins us live for an unscripted conversation about childhood cancer advocacy, from the beginnings of his involvement to present day. Notable achievements range from MC-ing events for the Denver Chapter of St. Baldrick's Foundation for several years, to breaking records for blood and platelet donations to Children's Hospital Colorado, to his work with Jack's Angels Foundation towards the success of the National DIPG Awareness Resolution in the House and Senate, including trailblazing 2 Moonshot4Kids Congressional DIPG/Childhood Brain Cancer Briefings and Summits in Washington DC in 2020 and 2022; the impact of his contributions continue.
    Show More Show Less
    58 mins
  • DIPG Research: From a Researcher on the Front Lines to Trail Blazing Parent, A Pathway to a Cure

    DIPG Research: From a Researcher on the Front Lines to Trail Blazing Parent, A Pathway to a Cure
    Jun 30 2023
    Childhood Cancer Talk Radio interviews Noah Berlow PhD, with Children's Cancer Therapy Development Institute from the perspective of dedicated researcher fighting the deadliest childhood cancer on the front lines. The second half features an interview with Gerry Tye, a DIPG Dad who trailblazed the DIPG Research Group on Facebook who shares the reality behind, and motivation for, this crucial research for all of oncology.
    Show More Show Less
    59 mins