• A Day in the Sun for Childhood Brain Cancer: The Survivors, The Doctor, the Book

  • Jul 26 2024
  • Length: 58 mins
  • Podcast

A Day in the Sun for Childhood Brain Cancer: The Survivors, The Doctor, the Book

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  • Summary

  • Today's interview features childhood brain cancer survivors Tori Moreno (DIPG) and Michael Keller (Astrocytoma G3), both having received treatment at the Burzynski Clinic in Houston, TX over 2 decades ago. As long-term survivors, they tell of their early memories and shared triumphs of enjoying, for all practical purposes, normal and healthy lives with a special fondness for "Dr. B", including Michael Keller's mom Christine who was helpful to detail their experiences as Michael was just a baby when diagnosed. A controversial doctor with a controversial therapy, Dr. Burzynski represents a sort of enigma of modern research science: a promising treatment with no development support, paired with the deadliest of diseases for our most vulnerable of citizens, childhood brain cancer. Dean and Wendy Fachon join us to further explain the kinds of obstacles with which a young person and their family are confronted when attempting to navigate a pathway to desired treatment amid very few options, as they did with their late son, Neil. Their recently published book of these long, arduous but light-filled adventures, "DIPG", can be found at www.dipgbook.com.
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