For some encephalitis patients, finding good medical care is half the battle (or more) towards getting on the road to healing. Many doctors simply lack adequate knowledge or expertise to effectively diagnose and manage this condition. In today’s episode, we cover some of my thoughts on learning how to advocate for yourself in a medical setting.

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This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!

You can find more insight into my story on my blog, http://wherearemypillows.com/

Social links:

Facebook: https://www.facebook.com/wherearemypillows 

Instagram: https://www.instagram.com/wherearemyp...

Twitter: https://twitter.com/wampillows

Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/

Blog: http://wherearemypillows.com/

From cutting-edge research shared by encephalitis experts, to inspiring stories from patients and caregivers, #WEDConf2021 was a day to remember! Shoutout to the Encephalitis Society, the AE Alliance, the Anti-NMDA Receptor Encephalitis Foundation, Encephalitis 411, and the Hashimoto’s Encephalopathy/SREAT Alliance for orchestrating a superb day of programming (not to mention their work year-round to improve the lives of patients and caregivers!).

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This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!

You can find more insight into my story on my blog, http://wherearemypillows.com/

Social links:

Facebook: https://www.facebook.com/wherearemypillows 

Instagram: https://www.instagram.com/wherearemyp...

Twitter: https://twitter.com/wampillows

Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/

Blog: http://wherearemypillows.com/

Most likely, recovery will NOT be linear, pretty, or fast. From one encephalitis survivor to another: don't disregard your mental health, and allow yourself time and patience to recover physically AND psychologically from surviving encephalitis.

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This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!

You can find more insight into my story on my blog, http://wherearemypillows.com/

Social links:

Facebook: https://www.facebook.com/wherearemypillows 

Instagram: https://www.instagram.com/wherearemyp...

Twitter: https://twitter.com/wampillows

Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/

Blog: http://wherearemypillows.com/

If neurological or psychological issues are impairing your cognition, it’s tremendously helpful to get professional testing done to characterize your level of functioning on a granular level. Why? You can get help from speech/cognitive therapists! Why else? Because doctors are more inclined to recognize clinical recovery and/or relapse!

World Encephalitis Day: what’s it about? In today’s episode we reminisce about last year’s conference and discuss what’s going down this year for 2021.

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This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!

You can find more insight into my story on my blog, http://wherearemypillows.com/

Social links:

Facebook: https://www.facebook.com/wherearemypillows 

Instagram: https://www.instagram.com/wherearemyp...

Twitter: https://twitter.com/wampillows

Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/

Blog: http://wherearemypillows.com/

Schooling, career trajectory, social life, family ties—encephalitis can radically throw all of these things upside down. Despite the disruptive impact it's had on my life, I'm also incredibly thankful to have overcome the worst of it and to have a renewed sense of optimism for what's to come!

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This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!

You can find more insight into my story on my blog, http://wherearemypillows.com/

Social links:

Facebook: https://www.facebook.com/wherearemypillows 

Instagram: https://www.instagram.com/wherearemyp...

Twitter: https://twitter.com/wampillows

Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/

Blog: http://wherearemypillows.com/

What does medical trauma and medical system-induced anxiety feel like? Let me tell you a story…

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This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!

You can find more insight into my story on my blog, http://wherearemypillows.com/

Social links:

Facebook: https://www.facebook.com/wherearemypillows 

Instagram: https://www.instagram.com/wherearemyp...

Twitter: https://twitter.com/wampillows

Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/

Blog: http://wherearemypillows.com/