• PCOS: One woman’s holistic path to weight loss and healing
    Sep 21 2022

    Bethan Youd has Polycystic Ovarian Syndrome, or PCOS. It’s a hormonal condition so common that one in ten women of reproductive age have it. Many of them, like Bethan, will be told upon diagnosis that it’s primarily a reproductive issue that can cause fertility problems. But Bethan’s message is that although it can mean difficulties getting pregnant, it should also be seen and treated as an overall medical condition – one that can cause significant weight gain that is not easily remedied by intensive exercise and diet, as well as blood sugar spikes, irregular periods, inflammation and hair loss. In this episode Bethan explains what major holistic based changes in lifestyle and how she eats has helped her overcome her symptoms. 

     

    Bethan Youd on Instagram: healing_pcos_mama

     

    Wellbeing Magazine: Why is PCOS Misunderstood

     

    The New York Times : Polycystic Ovary Syndrome: What It Is, How to Manage It

    -----------------------

    StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.


    Learn more about StuffThatWorks.


    We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness. 

    • Contribute to the PCOS Community
    • Find your condition community. 

    Music for The Patient Is In courtesy of Blue Dot Sessions.


    Show More Show Less
    42 mins
  • Sjögren's Syndrome and Building a Support System
    Jun 27 2022

    When Heather Foisy was diagnosed with an autoimmune illness called Sjogren's Syndrome, she felt her world was falling apart. The disease had already been making her nauseous at every meal, and had caused such bad abdominal pain that even walking down the hallway could bring her to tears. But now, with the diagnosis, depression and loneliness set in. At the same time, however,  so did a measure of denial. Heather, intent on distracting herself, continued to go out frequently with her hard-partying friends. That is, of course, until her body crashed and she realized she had to retool her life, all the way down to the way she socialized and made friends.  In this episode Heather describes what she learned in forging a supportive network of friends and family in the wake of chronic illness.

    Related Links:

    Heather Foisy's advocacy blog: Phoenix Soul Warrior 

    Heather on TikTok: @PhoenixSoulWarrior   


    Free Prepping For Your Rheumatologist Appointment Worksheet: https://www.phoenixsoulwarrior.com/resources-1

    Facebook Online Support Group


    Sjogren's Foundation 

    Butyoudontlooksick.com: The Spoon Theory 


    The New York Times: Five Things I wish I'd known before my Chronic Illness

    -----------------------

    StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.


    Learn more about StuffThatWorks.


    We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness. 

    • Contribute to the Sjogren Community
    • Find your condition community. 

    Music for The Patient Is In courtesy of Blue Dot Sessions.


    Show More Show Less
    32 mins
  • How to Fight Phantom and Residual Limb Pain
    Mar 9 2022

    Phantom limb pain is the very real, sometimes excruciating pain and discomfort that occurs after a limb has been amputated. As many as 80 percent of amputees experience it. For some, it is accompanied by a related issue: residual limb pain, which refers to pain in the part of a limb that remains after amputation.  Listen in to this conversation between two experts: Kiera Roche, a life-long athlete whose right leg was amputated below her knee after a car accident and Keren Fisher, a psychologist who researches this type of pain and helps people adjust to limb difference.

    Related Links:

    Limb Power: Advocacy for individuals with limb difference


    The Financial Times: Breakthrough in amputation narrows gap between human and machine


    Amplitude Magazine: New Wrinkles in Phantom Limb Treatment

    -----------------------

    StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.


    Learn more about StuffThatWorks.


    We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness. 

    • Contribute to the Phantom Limb Syndrome and/or Residual Limb Pain Communities
    • Find your condition community. 

    Music for The Patient Is In courtesy of Blue Dot Sessions.


    Show More Show Less
    34 mins
  • Celiac and Gluten-Sniffing Dogs
    Jan 26 2022

    Ellie Angold, a college student in California has Celiac disease, an autoimmune disorder of the gut triggered by gluten proteins in wheat and other grains. Her case is so severe that even trace amounts of gluten can leave her violently ill. When she found out there was such a thing as a gluten detection dog she decided to train a dog herself.  So she bought an Australian Shepherd puppy and got to work. This is their story.

    Related Links: 


    The Today Show: Gluten-sniffing dogs help people with celiac disease


    Celiac Disease Foundation: Can Service Dogs Help Sniff Out Gluten?


    The New York Times: Should You Screen Your Child For Celiac Disease? 


    -----------------------

    StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.


    Learn more about StuffThatWorks.


    We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness. 

    • Contribute to the Celiac Community
    • Find your condition community. 

    Music for The Patient Is In courtesy of Blue Dot Sessions.

    Show More Show Less
    28 mins
  • The Power of Exercise to Slow Parkinson's Disease
    Nov 14 2021

    Related Links: 


    The New York Times: What It Feels Like to Live with Parkinson’s


    Brain and Life: Boxing withParkinson’s Puts the Disease on the Ropes 

    Cleveland Clinic: Exercise for People with Parkinson’s Disease


    -----------------------

    StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.


    Learn more about StuffThatWorks.


    We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness. 

    • Contribute to the Parkinson's Community
    • Find your condition community. 

    Music for The Patient Is In courtesy of Blue Dot Sessions.

    Show More Show Less
    19 mins
  • The Holy Grail: Finding Relief from Crohn’s Disease through Diet
    Sep 23 2021

    More from Nathan Edwards:

    Nathan’s website: https://www.crohnsnaturally.com/

    Related Articles and Resources:

    • The New York Times: Crohn’s Disease Is on the Rise
    • MedPage Today: Dietary Interventions May Prove Helpful in Curbing Development of Crohn's Disease

    -----------------------

    StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.


    Learn more about StuffThatWorks.


    We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness. 

    • Contribute to the Crohn's disease community.
    • Find your condition community. 

    Music for The Patient Is In courtesy of Blue Dot Sessions.

    Show More Show Less
    37 mins
  • MS and Exercise
    Jul 18 2021

    More from Kaitlyn Cervi:
    Kaitlyn will soon be launching her own podcast called "Health of Everyday Life."
    You can check it out here:

    • Instagram
    • Facebook Page

    Related Articles and Resources:

    • The Washington Post: Exercising with MS Should Be tailored to Each Patient
    • John Hopkins Medicine: Multiple Sclerosis: Why are Women More at Risk? 

    -----------------------

    StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.


    Learn more about StuffThatWorks.


    We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness. 

    • Contribute to the multiple sclerosis community.
    • Find your condition community. 

    Music for The Patient Is In courtesy of Blue Dot Sessions.

    Show More Show Less
    33 mins
  • PCOS and Having a “Lady Beard”
    Jun 17 2021

    Related Articles and Resources:

    • The New York Times: PCOS: What it is. How to Manage it
    • Allure: Women with PCOS Facial Hair Explain Why They Choose to Celebrate Their Facial Hair

    -----------------------

    StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.


    Learn more about StuffThatWorks.


    We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness. 

    • Contribute to the PCOS research community.
    • Find your condition community. 

    Music for The Patient Is In courtesy of Blue Dot Sessions.

    Show More Show Less
    21 mins