• Sjögren's Syndrome and Building a Support System

  • Jun 27 2022
  • Length: 32 mins
  • Podcast

Sjögren's Syndrome and Building a Support System

  • Summary

  • When Heather Foisy was diagnosed with an autoimmune illness called Sjogren's Syndrome, she felt her world was falling apart. The disease had already been making her nauseous at every meal, and had caused such bad abdominal pain that even walking down the hallway could bring her to tears. But now, with the diagnosis, depression and loneliness set in. At the same time, however,  so did a measure of denial. Heather, intent on distracting herself, continued to go out frequently with her hard-partying friends. That is, of course, until her body crashed and she realized she had to retool her life, all the way down to the way she socialized and made friends.  In this episode Heather describes what she learned in forging a supportive network of friends and family in the wake of chronic illness.

    Related Links:

    Heather Foisy's advocacy blog: Phoenix Soul Warrior 

    Heather on TikTok: @PhoenixSoulWarrior   


    Free Prepping For Your Rheumatologist Appointment Worksheet: https://www.phoenixsoulwarrior.com/resources-1

    Facebook Online Support Group


    Sjogren's Foundation 

    Butyoudontlooksick.com: The Spoon Theory 


    The New York Times: Five Things I wish I'd known before my Chronic Illness

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    StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.


    Learn more about StuffThatWorks.


    We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness. 

    • Contribute to the Sjogren Community
    • Find your condition community. 

    Music for The Patient Is In courtesy of Blue Dot Sessions.


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