I'm Aware That I'm Rare: the phaware® podcast

By: phaware global association
Listen for free

  • Summary

  • I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global
    Copyright 2021 phaware global association. All Rights Reserved.
    Show More Show Less
Physical Illness & Disease Hygiene & Healthy Living
Show More Show Less
activate_Holiday_promo_in_buybox_DT_T2
activate_samplebutton_t1
Episodes
  • Episode 488 - Lori Myers

    Episode 488 - Lori Myers
    Sep 30 2024

    Lori Myers, shares her experience living with VSD and Tetralogy of Fallot, which caused her to be born as a "blue baby" and have various health issues throughout her life. After multiple surgeries and diagnoses, she was eventually told she had pulmonary arterial hypertension (PAH). Despite the prognosis, Lori is now in her tenth year since the diagnosis. She emphasizes the importance of listening to one's own body and following medical advice. Lori finds strength in her family, particularly her grandchildren.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware
    Engage for a cure:     www.phaware.global/donate #phaware
    Share your story:     info@phaware.com
    Show More Show Less
    5 mins
  • Episode 487 - Sue Liss

    Episode 487 - Sue Liss
    Sep 23 2024

    PAH patient and Chicago-area support group leader, Sue Liss, discusses her pulmonary arterial hypertension diagnosis. Sue is involved with multiple PH related advocacy groups. Through these groups, she offers support and guidance, particularly in navigating medication funding challenges and accessing the right care, emphasizing the importance of community and shared experiences in managing this rare disease.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware
    Engage for a cure:     www.phaware.global/donate #phaware
    Share your story:     info@phaware.com
    Show More Show Less
    12 mins
  • Episode 486 - Scott E. Olitsky, MD

    Episode 486 - Scott E. Olitsky, MD
    Sep 16 2024

    In this episode, Dr. Scott Olitsky, the Global Center of Excellence Outreach Director for Cure HHT, discusses hereditary hemorrhagic telangiectasia (HHT), a genetic disease characterized by abnormal blood vessel development. HHT can cause bleeding in various parts of the body, with nosebleeds being the most common symptom. In some cases, HHT can lead to the development of pulmonary arterial hypertension (PAH). Medications that dilate blood vessels can worsen bleeding in HHT patients. Dr. Olitsky shares his personal connection to HHT and PAH and highlights the efforts of Cure HHT to improve diagnosis and treatment options for patients.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware
    Engage for a cure:     www.phaware.global/donate #phaware
    Share your story:     info@phaware.com @curehht
    Show More Show Less
    9 mins

What listeners say about I'm Aware That I'm Rare: the phaware® podcast

Average customer ratings

Reviews - Please select the tabs below to change the source of reviews.

Audible.co.uk reviews

Amazon reviews
No Reviews are Available