• Global Genes RARE Advocacy Summit - Part 1

  • Dec 5 2023
  • Length: 59 mins
  • Podcast

Global Genes RARE Advocacy Summit - Part 1

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  • Summary

  • Welcome back to Insightful Moments: My VIBE, presented by PTC Therapeutics. In this episode, Paula Orandash attended the Global Genes RARE Advocacy Summit in San Diego where she spoke with many people who are connected to the rare disease community – whether as parents, caregivers, or as patients themselves. In this episode, you’ll hear from a selection of summit attendees who share their experiences with undiagnosed conditions - both the struggles and the moments of triumph. So join us for this insightful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

    For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

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