Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. It is Day 2 at the 28th annual PPMD conference for physicians, caregivers, and families affected by Duchenne Muscular Dystrophy in Arizona. In today’s episode, Paula Orandash is speaking with individuals and families affected by DMD about how they’ve learned to cultivate and maintain their own independence as well as find support when they needed it. You’ll hear Darrell discuss the challenge of being a single parent to a child with Duchenne. You’ll also hear from Jim and Audra as they tell us about transitioning their son from a manual to a motorized wheelchair. Last, we have Hulda, who tells us about how she learned to help herself, and how she’s using what she learned to encourage others in the most amazing way. So press play and join us for another thoughtful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

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Welcome back to another installment of Insightful Moments: My VIBE, presented by PTC Therapeutics. Previously, Emily Hintze attended the Friedreich's Ataxia Symposium hosted by the Friedreich's Ataxia Research Alliance and Children's Hospital of Philadelphia in King of Prussia, Pennsylvania, where she spoke with a number of people who are affected by Friedreich's Ataxia, or FA. For this part 2 episode you’ll hear from two guests in the F.A. community as they share insightful stories about their journeys with FA, and how they have turned advocacy into action. So press play and join us for this wonderful part 2 episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

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Welcome back to Insightful Moments: My VIBE, presented by PTC Therapeutics. In this episode, Paula Orandash attended the Global Genes RARE Advocacy Summit in San Diego where she spoke with many people who are connected to the rare disease community – whether as parents, caregivers, or as patients themselves. In this part two episode, you’ll hear from three mothers of children with diagnosed rare diseases as they share their stories about the challenges of being a caregiver, the diagnostic journeys they experienced, how they advocate for their children, and so much more. So join us for this insightful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

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