In this episode, I explore the topic of appreciation and its importance in dealing with rare genetic disorders. I share my personal experience of receiving my child's Benjamin’s diagnosis and how I was initially overwhelmed with worry and fear. I felt the need to constantly research worst-case scenarios and understand everything about the illness. However, this led me to live in the future, always thinking about what could go wrong instead of appreciating the present moment with my child. It was a wake-up call for me to shift my perspective and commit to being present and appreciating the moment with my child. I discuss how this change in perspective resulted in an amazing response from my child. I noticed that my child was more receptive to treatments and improvements, and I could feel my child's cells responding positively. I emphasize the importance of creating a positive environment around my child with people who were looking for the good things and celebrating my child's successes. I even hired an assistant who was able to be present with my child and appreciate her for who she was, without worrying about the future. The episode reminds listeners in a similar situation to appreciate the present moment and not let worry overshadow the good things. It's important to be informed and prepared, but it's equally important to appreciate and celebrate the present. What you appreciate appreciates you back, and it can make a huge difference in the life of someone with a rare genetic disorder
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Feb 19 202314 mins
32 mins