• Benjamin diagnosed with MPS 1 - The impossible turned into possible!

  • Jan 17 2023
  • Length: 32 mins
  • Podcast

Benjamin diagnosed with MPS 1 - The impossible turned into possible!

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  • Summary

  • This episode tells the story of one family’s struggle ( my own story) with a devastating diagnosis when their two-year-old son Benjamin was found to have a progressive genetic disorder called Hurler Syndrome (MPS1). With doctors warning that Benjamin may only live for five years, his parents refused to give in and instead used this life-changing moment to take charge of their own future. This remarkable story is an inspiring tale of hope and courage – showing how even in the face of an impossible situation, nothing is ever truly out of reach.
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