Disability Politics

In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.

There's nothing more frustrating than watching your bright, talented son or daughter struggle with everyday tasks like finishing homework, putting away toys, or following instructions at school. Your "smart but scattered" child might also have trouble coping with disappointment or managing anger. Drs. Peg Dawson and Richard Guare have great news: There's a lot you can do to help.

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the 20th century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?

Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them - About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers, and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.

First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation.

Now, as more families like Michael's are affected by a growing number of disorders and difficulties ranging from autism to food allergies, the need for programs and paradigm shifts is greater than ever. Beates thus seeks to motivate churches to pursue ministry to children and adults with developmental disabilities. He works through key Bible passages on brokenness and disability to develop helpful principles for believers and churches, teaching them first to embrace their own brokenness and then to embrace those who are more physically and visibly broken.

The modern world is built for neurotypicals. Needless noise, bright flashing lights, small talk, implication and ‘unwritten rules’; it can be a nightmarish dystopia as far as the autistic population is concerned. In Untypical, Pete Wharmby lays bare the experience of being ‘different’, explaining with wit and warmth just how exhausting it is to fit into a world not designed for you.

Growing Up Disabled in Australia is the fifth book in the highly acclaimed, best-selling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt.

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

In Bodyminds Reimagined Sami Schalk traces how Black women's speculative fiction complicates the understanding of bodyminds - the intertwinement of the mental and the physical - in the context of race, gender, and (dis)ability. Bridging Black feminist theory with disability studies, Schalk demonstrates that this genre's political potential lies in the authors' creation of bodyminds that transcend reality's limitations.

Lamar Hardwick was thirty-six years old when he found out he was on the autism spectrum. While this revelation helped him understand and process his own experience, it also prompted a difficult re-evaluation of who he was as a person. And as a pastor, it started him on a new path of considering the way disabled people are treated in the church. Disability and the Church is a practical and theological reconsideration of the church's responsibilities to the disabled community.

Sabine Heinlein spent almost a year reporting at "The Farm", a program for mental patients at the notorious Creedmoor Psychiatric Center in Queens. Originally designed to teach its "members" confidence and skills by caring for animals and plants, the Farm had long become a dysfunctional hoarder's den. The patients sat idly on chairs in a grimy dayroom filled with the therapist's "collectibles" and garbage.

As a senior non-commissioned officer of Delta Force, the most elite and secretive special operations unit in the US military, Command Sergeant Major Tom Satterly fought some of this country's most fearsome enemies. Tom is a legend even among other Tier One special operators. Yet the enemy that cost him three marriages, and ruined his health physically and psychologically, existed in his brain. Told through Satterly's firsthand experiences, it also weaves in the reasons for his career-long battle against the most insidious enemy of all: post-traumatic stress.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

Do you find yourself constantly asking your child to "pick up the pace"? Does he or she seem to take longer than others to get stuff done - whether completing homework, responding when spoken to, or getting dressed and ready in the morning? Drs. Ellen Braaten and Brian Willoughby have worked with thousands of kids and teens who struggle with an area of cognitive functioning called "processing speed" and who are often mislabeled as lazy or unmotivated.

Disability critiques of architecture usually emphasize the need for modification and increased access, but The Architecture of Disability calls for a radical reorientation of this perspective by situating experiences of impairment as a new foundation for the built environment. With its provocative proposal for "the construction of disability," this book fundamentally reconsiders how we conceive of and experience disability in our world.

An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.