Disability Activists

Paralyzed from polio at 18 months, Judy Heumann began her struggle for equality early in life. From fighting to attend grade school after being described as a 'fire hazard' to later winning a lawsuit against the New York City school system for denying her a teacher's license, to leading the section 504 sit-in that led to the creation of the Americans with Disabilities Act, Judy's actions set a precedent that fundamentally improved rights for disabled people around the globe.

As a boy, severely disabled after contracting polio as a baby in working class Liverpool, Bert Massie found himself wondering why disabled people were expected to adapt to the world around them, and not the other way round. In his teens, he began to campaign for rights for disabled people, and having battled his way through prejudice and the education system to become a Bachelor of Arts and a qualified social worker, he became a prominent figure in the fight for fair treatment for disabled people leading to the ground breaking Disability Discrimination Act.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.

After 30 years of a healthy, rewarding, and exciting life, I wake up in a hospital bed unable to move. The neurosurgeon leans down and breaks the news: You won't regain any function in your body and you will never walk again. My medical insurance sends me home, discontinues my care, and tells me to "adapt to my new life". Little Big Steps is the story of the pivotal moments, interactions, and breakthroughs following the injury that turned my life upside down.

Eddie Ndopu was born in 1990 with Spinal Muscular Atrophy (SMA), a rare degenerative motor-neuron disease, and told that he wouldn't live beyond age five. Now, thirty-one years old and stronger than ever, he continues to celebrate each turn around the sun as an existential defiance of the odds. Gay, Black and a wheelchair user, he is now an eminent thought-leader and holds positions at two of the most important organizations on the planet. Sipping Dom Pérignon Through a Straw is Eddie's odds-obliterating story that illustrates what true leadership can look like.

Mothering under normal circumstances takes all you have to give. But what happens when your child is disabled, and sacrificing all you've got and more is the only hope for a decent future? Full of rage and resilience, duty and love, Ashley Bristowe delivers a mother's voice like no other we've heard.

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Tommy Jessop is a multi-award winning actor, theatre performer, and campaigner. Tommy has been at the vanguard of bringing awareness of the potential of people living with Down syndrome to the media, and to government. A Life Worth Living will be Tommy's story - from his journey into acting and campaigning while showing his unstoppable determination, charisma, and love for life.

In this heartfelt, thought-provoking and often hilarious book, Lottie Jackson reflects on her experiences of living with disability: from the pitfalls of going shopping on a mobility scooter, and the headache of defining oneself on a tick-box form, to a slapstick scuffle with the so-called 'easy-pull' tights aid, and the intense pleasure of finally swapping a hospital gown for a slinky dress. Lottie captivatingly expresses the raw vulnerabilities, injustices and untold joys of disability, as well as the bizarre everyday occurrences that able-bodied people usually don't experience.

Robert Hoge was born with a giant tumour on his forehead, severely distorted facial features and legs that were twisted and useless. His mother refused to look at her son, let alone bring him home. But home he went, to a life that, against the odds, was filled with joy, optimism and boyhood naughtiness. Home for the Hoges was a bayside suburb of Brisbane. Robert's parents, Mary and Vince, knew that his life would be difficult, but they were determined to give him a typical Australian childhood.

For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are made. Disenfranchisement of people of color and multi-marginalized communities within the disability rights community is not new and has left many inside the community feeling frustrated and unheard. In Demanding Solidarity, Baldwin candidly shares her journey to becoming a disability activist and policymaker in DC while critiquing the disability rights community.

Nineteen people from across the globe, ranging in age from 20 to 70-plus, tell their stories of living and thriving in diverse fields - in sport, the arts, medicine, business, and more. With refreshing frankness, they share their successes along with their struggles - grit is the one characteristic they all have in common. These are not stories of people overcoming disability - they’re stories of people accommodating disability while pursuing their dreams. Pure Grit shines a light on boundless possibility whatever the individual challenge.

James Partridge was 18 years old in 1977 when his face and body were severely burned in a car accident. Refusing to succumb to society's expectations, James chose not to hide in the shadows, but to succeed despite his distinctive face and live a happy and hugely successful life, both personally and professionally. Face It tells the story of James' recovery and the work he has done ever since to support others with physical differences to cope with the isolation and discrimination they so often face.

This honest, outspoken, and thought-provoking memoir by award-winning writer and appearance activist Carly Findlay will challenge all your assumptions and beliefs about what it is like to have a visibly different appearance. Carly lives with a rare skin condition, Ichthyosis, and what she faces every day, and what she has to live with, will have you cheering for her and her courage and irrepressible spirit. This is both a moving memoir and a proud manifesto on disability and appearance diversity issues.

In this powerful new history, New York Times bestselling author Max Wallace draws on groundbreaking research to reframe Helen Keller’s journey after the miracle at the water pump, vividly bringing to light her rarely discussed, lifelong fight for social justice across gender, class, race, and ability. Peeling back the curtain that obscured Keller’s political crusades in favor of her “inspirational” childhood, After the Miracle chronicles the complete legacy of one of the 20th century’s most extraordinary figures.

When Helen Keller was very young, she got a rare disease that made her deaf and blind. Suddenly, she couldn't see or hear at all, and it was hard for her to communicate with anyone. But when she was six years old, she met someone who changed her life forever: her teacher, Annie Sullivan. With Miss Sullivan's help, Helen learned how to speak sign language and read Braille. Armed with the ability to express herself, Helen grew up to be come a social activist, leading the fight for people with disabilities and so many other causes.

Born in Ghana, West Africa, with one deformed leg, he was dismissed by most people - but not by his mother, who taught him to reach for his dreams. As a boy, Emmanuel hopped to school more than two miles each way, learned to play soccer, left home at age 13 to provide for his family, and, eventually, became a cyclist. He rode an astonishing 400 miles across Ghana in 2001, spreading his powerful message: Disability is not inability. Today, Emmanuel continues to work on behalf of the disabled.

Sam always knew he was starting life on the back foot. When his parents split, Sam, his mother and his brother had to learn to survive in a world not built for single-parent families. Add to that Sam's diagnosis with a form of dwarfism and the odds seemed stacked against them. As surgeons kept breaking and resetting Sam's legs in attempts to keep him walking, disability and poverty collided, and it took all the family's strength not to crumple in the impact. In Broke, lawyer and disability advocate Sam Drummond weaves a poignant, stirring and deeply compassionate tale of life on the fringes.

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.