Showing titles in People with Disabilities

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

When Jade unexpectedly suffered from a rare condition which left her paralysed and in a wheelchair at the age of twelve, she never imagined that she'd one day meet her husband John and that together they would take to social media to dispel the stigma surrounding disability, one story at a time. From questions about suffering and sex to family and faith, Jade and John speak honestly and humorously about life as an inter-able couple.

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

It all started out pretty normal: Paige lived in the countryside with her parents and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer 'why?' in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control. But Paige was normal. She was popular and well-liked. And until she had a full mental breakdown, no one believed her when she claimed that she was not okay.

After years of unexplained health problems, Polly Atkin's perception of her body was rendered fluid and disjointed. When she was finally diagnosed with two chronic conditions in her thirties, she began to piece together what had been happening to her - all the misdiagnoses, the fractures, the dislocations, the bone-crushing exhaustion, the not being believed. Some of Us Just Fall combines memoir, pathography and nature writing to trace a fascinating journey through illness, a journey which led Polly to her current home in the Lake District.

What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm.

Amit Patel is working as a trauma doctor when a rare condition causes him to lose his sight within 36 hours. Totally dependent on others and terrified of stepping outside with a white cane after he's assaulted, he hits rock bottom. He refuses to leave home on his own for three months. With the support of his wife, Seema, he slowly adapts to his new situation, but how could life ever be the way it was? Then his guide dog, Kika, comes along....

On Good Friday 2010, Melanie Reid fell from her horse, breaking her neck and fracturing her lower back. She was 52. Paralysed from the top of her chest down, she was to spend almost a full year in hospital, determinedly working towards gaining as much movement in her limbs as possible and learning to navigate her way through a world that had previously been invisible to her.

Lucy Edwards is a UK-based blind broadcaster, content creator, Pantene Ambassador and disability activist. At only 17 her world went to black. In an instant Lucy lost her eyesight due to a rare condition called Incontinentia Pigmenti. She had to learn how to navigate her life all over again, the beginning of an extraordinary journey to find self-acceptance and happiness. Lucy took to the internet and started to upload her experiences. Through sharing her day-to-day routine in her viral 'How does a blind girl?' video series, Lucy's story gripped the nation.

A short, inspirational audiobook from Henry Fraser, a young quadriplegic motivational speaker and artist. Henry Fraser was a 17-year-old sports enthusiast and senior prefect when he broke his spinal cord and was left paralysed from the shoulders down. Life as he knew it was over, and yet, through extraordinary determination and a positive attitude, he has forged a successful career as an inspirational speaker and an artist.

This powerful, honest, hilarious and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys and the unseen realities of being a disabled woman. From navigating the worlds of education and work, dating and friendship; to managing care; contemplating motherhood; and learning to accept your body against a pervasive narrative that it is somehow broken and in need of fixing, The View From Down Here shines a light on what it really means to move through the world as a disabled woman.

In this honest and open account of life with her PDA daughter, Sasha, Steph Curtis reveals the everyday struggles and explores the milestones of raising a child diagnosed with Pathological Demand Avoidance. This book guides you through the Curtis family's 'lightbulb moment' of recognising Sasha's PDA profile following her autism diagnosis at the age of two, their experiences of various education settings and attempts to access support, everyday life at home and relationships with family and friends.

This intimate memoir reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of 35, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, she exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but - more importantly - as a thoroughly modern woman.

Hannah Daly is a pediatric occupational therapist and an advanced sensory integration practitioner who is profoundly dyslexic, dyspraxic, and has sensory processing disorder. She has multiple university degrees but still cannot read or write. In Knowing No Boundaries, she gives an honest account of living with these hidden disabilities. This book is a unique coming-of-age, feel-good memoir that strikes the balance of vulnerability and humor.

Diagnosed with pathological demand avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol. By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the 'scenic route' in order to flourish and reach their full potential.

At the age of sixty, and having lived with Parkinson’s disease for over ten years, Guy Deacon CBE set out on one last adventure: to drive solo from his home in the UK 18,000 miles and through twenty-five countries to Cape Town on the southern tip of Africa. This incredible journey, across Europe and down the full length of Africa, took the former British Army officer over twelve months. Along the way, he broke down five times, underwent one emergency evacuation, and took 3,650 prescription pills.

Nicolas Hamilton has been exceeding expectations since day one. Born with a form of cerebral palsy, Nicolas was told that he would never walk and would need a wheelchair for the rest of his life. Today he not only walks everywhere but he is the first disabled athlete to ever compete at the top level of British motorsport, The British Touring Car Championship, where he lines up on the grid alongside some of the world's best drivers. Now That I Have Your Attention follows Nicolas's remarkable journey and shares the valuable, tough, and often surprising lessons learned throughout his life.

When Ellie Goldstein was first diagnosed with Down Syndrome, her mother was soon told that her new-born would amount to nothing. For 21 years and counting, Ellie Goldstein has been defying the odds and overcoming every hardship thrown at her. Told she wouldn't walk, Ellie has danced on mainstages. Told she wouldn't learn, she has gained a college education. And told not to dream, Ellie has gone on to become the first model with Down Syndrome to be photographed for Gucci and continues to change the face of fashion from the inside out in countless international campaigns.

Temple Grandin, Ph.D., is a gifted animal scientist who has designed one third of all the livestock-handling facilities in the United States. She also lectures widely on autism - because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us.

It never gets better, but it does get easier. That’s the first thing Roz says to anyone who asks him for advice. Anyone who’s fighting like hell, just hanging on or putting the pieces back together. When you’re broken, fixed becomes an obsession.