Showing results for "Joséphine" in Medicine & Health Care Industry

Theirs was an unlikely life together. Sheila gave birth to Josephine on 11th May 1993 and for twenty-three years they co-existed in a loving mother-daughter relationship, but one with a difference. Josephine suffered catastrophic brain injury at birth, never spoke to Sheila, rarely smiled and was barely able to see the faces of the people who loved her.

The sometimes fragmentary tales of these people, their lives and deaths, are not included in official histories of a place. How, Ensign asks, has a large, socially progressive city like Seattle responded to the health needs of people marginalized by poverty, mental illness, addiction, racial/ethnic/sexual identities, and homelessness? Drawing on interviews and extensive research, Ensign shares a diversity of voices within contemporary health care and public policy debates.

In the new essays collected here, an interdisciplinary group of scholars asks age-old questions about the nature and well-being of humans in the context of a revolutionary new biotechnology - one that has the potential to change the genetic make-up of both existing people and future generations. Welcoming listeners who study related issues and those not yet familiar with the formal study of bioethics, the authors of these essays open up a conversation about the ethics of gene editing.