Showing results for "A Mother" in People with Disabilities

At the age of 30, Jake found himself hospitalized, grappling with the weight of anxiety, depression, and paranoia. Soon, he received the life-altering diagnosis of schizophrenia. In this intimate and illuminating book, you are invited into Jake's world, a world he shares with his mother, Laurette, through alternating chapters.

Weeks after giving birth, Holly Frances went from being a healthy 26-year-old new mom to paralyzed and on life support—in less than 72 hours. Diagnosed with a rare autoimmune disorder called Guillain-Barre Syndrome, Holly was trapped in her body, unable to move, speak, or hold her newborn daughter. Life Support tells the story of how Holly struggled to overcome the despair, hopelessness and physical pain, to regain her health and get back to being a mother to her daughter.

Barbara Anderson narrates with brutal honesty the day-to-day experience of having a child with disabilities: the challenges inside and outside the home, health and life complications, the shifting priorities, the daily Mt. Everest-sized struggle of having a child with an—until now—irreversible diagnosis such as infantile cerebral palsy.

Three months into her pregnancy with her first child, Hilary Yancey received a phone call that changed everything. As she learned the diagnosis - cleft lip and palate, a missing right eye, possible breathing complications - Hilary began to pray in earnest. Even in the midst of these findings, she prayed that God would heal her son. God could do a miracle unlike anything she had seen. Only when Hilary held her baby, Jack, in her arms for the first time did she realize God had given her something drastically different than what she had demanded.

At the height of popularity for radio stations and DJs in the '70s and '80s, Curry blazed a trail for himself as “Kid” Curry. His iconic “Bed Check” segment helped propel him to star status in Miami. It followed him during his 20-year path to the dream job of Major Market program director. The perks of the job included hanging out with music legends, being invited to the White House, meeting Johnny U and a Watergate burglar, traveling around the world to find the next “number one” song and, the best part, helping listeners in need.

In "You're Not Doing It Right," Ellen Patnaude bravely opens the door to the haunting reality of Lewy body dementia (LBD) and unravels its profound impact on families. One of the most common types of dementia after Alzheimer's disease, LBD is marked by fluctuations in cognition, hallucinations, and motor symptoms. The journey begins with subtle warnings of small changes in her mother's behavior that worry Patnaude's father, but go unnoticed by the author and her sibling.

Parenting can be a struggle, especially parenting a disabled child. In this flawlessly crafted memoir, Kramar describes championing her son, diagnosed with Sotos syndrome, through his short life. She examines the experience of loving and losing a child and reminds us that there is a way forward through the grief. Kramar’s memoir offers guidance, wisdom, and inspiration - an amazing story of redemption and hope.

When her son was diagnosed with autism at the age of three, Irma Velasquez was devastated. It was the pre-internet era of the early 1990s, and both information and experts were hard to find. Desperate for answers, she sought out therapists and educational programs designed to teach Aaron how to become successful in school and in life. But those early years ended up teaching Irma more than they taught Aaron. Irma realized her desire to "fix" her son had been a masquerade to fulfill her own needs, and she began to love him just as he was: perfect.

Darkness—that’s what Bozena Gasior remembers feeling when she first heard her two-year-old son’s autism diagnosis. What followed was a cacophony of despair and cries, not knowing what to do, say, or feel. It was the day she thought that part of her son’s life had died. But one eventful day some four years later, his fingers touched the piano keys for the first time, and she felt something—a glimmer of light shining down, illuminating her home and family.

For Magda Newman, normal was a goal—she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often taken for granted. But Nathaniel's severe Treacher Collins syndrome—a craniofacial condition—meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly?

February 29th is a date that comes into existence just once every four years. It is also the birthday of Thais - author Anne-Dauphine Julliand's darling daughter - who died of a genetic disease. Thais lived just shy of her fourth birthday. She had a short life but good one. As this special day is about to reappear on her calendar for the first time since her daughter passed away, Anne-Dauphine struggles with how to mark this momentous occasion. She wants to live fully on this special day: Thais would have been eight years old.