The POTScast

By: Standing Up to POTS Inc.
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  • Summary

  • Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.
    © 2021
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Economics Hygiene & Healthy Living Management Personal Success Physical Illness & Disease
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Episodes
  • Designing the Uplift compression device with Kishen Mitra and Sameer Kunte

    Designing the Uplift compression device with Kishen Mitra and Sameer Kunte
    Jan 8 2025

    Many POTS patients wear abdominal compression, but a team from Duke is researching ways to make it more comfortable and effective. Kishen Mitra and Sameer Kunte are leading the team and describe their work so far, researching patient preferences, technology, designs and plans to help POTS patients have better choices for abdominal compression devices.

    The Uplift survey findings are published here.

    Here is Uplift on LinkedIn Here is the Uplift website

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
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    43 mins
  • E238:Kristy’s Wild Ride

    E238:Kristy’s Wild Ride
    Dec 31 2024

    Kristy's POTS had her largely bedbound until her stubborn streak and competitive spirit led her to train for a 450 mile cycling race. She recounts the training, the 35-hour-long event, the aftermath, and what she's up to now.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
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    33 mins
  • E237:Great Resources from The Dysautonomia Project with Dr. June Bryant, DNP, APRN, CPNP-PC and Cheryl Faber

    E237:Great Resources from The Dysautonomia Project with Dr. June Bryant, DNP, APRN, CPNP-PC and Cheryl Faber
    Dec 22 2024

    The Dysautonomia Project is a Florida-based non-profit best known for their wonderful book on Dysautonomia for both patients and providers. But they also have other great resources including their DysCourse program for patients and caregivers, education courses for healthcare practitioners, list of recommended practitioners by geographic region, and more. Professor June Bryant, DNP, APRN, CPNP-PC and Educational Director Cheryl Faber explain their history, mission, upcoming events and how to get involved and/or take advantage of the offerings made possible by The Dysautonomia Project.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
    Show More Show Less
    44 mins

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