• The Importance of Community-Based Organizations for the SCD Community

  • Jun 28 2024
  • Length: 46 mins
  • Podcast

The Importance of Community-Based Organizations for the SCD Community

  • Summary

  • Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharmaceutical companies, and legislators.

    Panelists Include:

    Rae Blaylark (Sickle Cell Foundation of Minnesota) - Twitter/X - Facebook - LinkedIn - Instagram

    Howard Ffrench (SCDAA Miami) - Facebook

    TaLana Hughes (Sickle Cell Disease Association of Illinois) - LinkedIn - Facebook - Twitter/X

    Tabatha McGee (Sickle Cell Foundation of Georgia, Inc.) - LinkedIn - YouTube - TikTok - Twitter/X - Instagram

    Dr. Wanda Whitten-Shurney (SCDAA Michigan Chapter) - Instagram - Facebook - LinkedIn

    DeMitrious Wyant - Website

    SHOW DESCRIPTION

    Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

    TRANSPARENCY STATEMENT

    Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts featured in this episode have been compensated for their time.

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