The Hou To Guide

By: Katie and James Hou
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  • Summary

  • The Hou To Guide is both a podcast and blog that focuses on everyday life, travel, and accessibility. With the main focus on how to live a life you love when someone you love has a disability. Inspired by our own journey becoming parents to a special needs child, we strive to be a resource in a barrage of information that can be difficult to wade through. We will offer advice, what has worked for us and is working for us, as well as feature other families and experts. We will also document our everyday lives and discuss both the challenges, changes, and surprises we experience as a family of 6. We also want to highlight both local and larger travel, with a focus on national parks within the United States.
    © 2023 The Hou To Guide
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Episodes
  • Jakes.Got.This: Jake's SDR story with Shannon Kulesa (Episode 17)

    Jakes.Got.This: Jake's SDR story with Shannon Kulesa (Episode 17)
    Oct 29 2020

    In this week's episode, we learn more about Selective Dorsal Rhizotomy by speaking with Shannon Kulesa, the mother of Jake.

    Jake is a twin, born early and with cerebral palsy. Shannon and I discuss Jake's SDR journey, how she found out about the surgery, the decision-making process, how they chose a hospital and provider, and what Jake's life is like now. 
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    55 mins
  • All about Cerebral Palsy (Episode 16)

    All about Cerebral Palsy (Episode 16)
    Oct 6 2020

    This week we learn all about Cerebral Palsy with the Director of Communication for The Cerebral Palsy Alliance Foundation, Jocelyn Cohen who also has CP.

    We discuss the different types and ways to categorize CP, different treatment options, what it was like growing up in the 80s and 90s with CP, how adults with CP navigate their world, the role of caregivers, different ways to connect with other CP patients and caregivers, what CPARF is currently researching, how to make an impact on CP research, the economic burden of having CP, and more.

    Important Links
    The Cerebral Palsy Alliance Research Foundation
    Faces of CP
    PTwithCP
    CPSoccer
    Texas Cerebral Palsy Connection
    United Cerebral Palsy
    American Academy of Cerebral Palsy and Developmental Medicine
    Center for Disease Control
    Headstrong Art
    Hou To Guide on Instagram
    Hou To Guide on Facebook
    I've Got 99 problems, but Palsy is just one: Maysoon Zayid TED talk
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    1 hr and 26 mins
  • Declan's SDR Story (Episode 15)

    Declan's SDR Story (Episode 15)
    Oct 2 2020

    Today is Declan's 1 year SDR anniversary. In honor of this day and the huge milestone it is, we will kick off our SDR series beginning by telling Declan's SDR story.

    We go over what SDR (selective dorsal rhizotomy) is, the selection process for St. Louis Children's Hospital, our personal journey to making this decision, and the how the surgery went for Declan.

    Important Links
    What is SDR- St. Louis Children's Hospital
    St. Louis Children's Hospital Center for Cerebral Palsy Spasticity
    Texas Children's Hospital
    Gillette Clinic Specialty Healthcare
    Selective Dorsal Rhizotomy Facebook Group
    Interview with Paige Flamm
    Hou To Guide Instagram Account
    TSA Cares Travel Assistance
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    40 mins

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