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Understanding the shock, pain, and anxiety that comes after a terminal diagnosis is often best articulated through first-person stories. For the first Art of Dying Well podcast of 2025, we're speaking to Matt Parkes about how he cared for his dad, Jeff, at the end of his life.

Jeff became aware something was seriously wrong health-wise in 2011. Something had changed. Something felt different. He had a number of episodes where he would lose his balance, and eventually he was diagnosed with Progressive Supranuclear Palsy (PSP), a rare brain condition that causes problems with movement, vision, speech, and swallowing.

Not wanting to 'diminish', Jeff decided he wanted to end his life and was initially actively suicidal. Matt, a Catholic, managed to steer him away from that course of action - with his wife’s loving help - and spent many years as Jeff's primary carer.

This was obviously a very difficult time, but in those final years, there were remarkable, poignant moments of love and reconciliation that never would have experienced had he followed his initial desire to end his life.

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Since the dawn of time, people have been asking those huge existential questions: What comes next? What happens to us after we die? These questions have preoccupied artists, writers, thinkers, medics, teachers, religious leaders – pretty much all of us at one time or another.

Art and the Afterlife was an event held at The Exchange, a theatre in Twickenham run by St Mary’s University. It was part of an ongoing project exploring the many ways people understand and reflect on death and the afterlife with a view to improving our shared literacy around death - particularly in end-of-life contexts.

This 20-minute podcast was recorded just before the three panelists stepped out on stage. We spoke to ebullient art historian Lynne Hanley, former Sotheby’s auctioneer and founder of the brilliant christian.art website, Father Patrick van der Vorst, and the knowledgeable, and ever-wise Baroness Sheila Hollins who, as well as discussing her series of marvellous word-free picture books, also shared her granddaughter’s award-winning and poignant artwork that looks through Mary's eyes as she mourns Jesus on the cross.

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With parents, grandparents, and guardians all getting into the flow of the dreaded autumnal 'back to school' routine, it seemed appropriate for us to revisit a topic we first looked at back in September 2021 - bereavement in education.

Earlier this year, St Mary's University and The Art of Living and Dying Well (note our new name) held a summit to gather experts from across the sector to examine how death literacy can be improved in our schools and colleges, and how policies and training can be shaped to ensure that knowledge and visibility of a young person's grief lies at the heart of our response.

For this 'Art of Dying Well' podcast, we want to build on the conversations started at the summit. You'll hear four important voices – a primary school teacher, a director of Initial Teacher Training at a university in the east of England, and two young pupils who suffered a bereavement early in their lives.

With thanks to:

Daniel and Matthew, primary school teacher Paige McCarthy, and Jenny Fogarty, Director of Initial Teacher Training at Anglia Ruskin University.