Sister, You're Not Alone

By: Maia Meier
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  • Summary

  • Welcome Sis! This show is a safe space for candid, honest conversations about being a woman living with a bleeding disorder. From diagnosis to struggles with periods, surgeries, managing your care, advocating for yourself and the impact this all has on your mental health, we'll hear from brave women who share their stories and information from experts in the field. Let's normalize these disorders, raise awareness and encourage and empower each other to live your best life!
    2022
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Physical Illness & Disease Hygiene & Healthy Living
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Episodes
  • Finally Getting Diagnosed at 46, Impacts on Quality of Life, and Failings of Medical Physicians: A Conversation with Dani

    Finally Getting Diagnosed at 46, Impacts on Quality of Life, and Failings of Medical Physicians: A Conversation with Dani
    Jan 20 2023

    Dani, at the age of 46 finally recieved her diagnosis of VWD Type 1. After years of struggling with bleeding symptoms, several hospitalizations and traumatic incidents, she was able to put a name and a reason to what had been causing so many of the problems she'd faced over the years. Listen in as she describes her diagnosis story, the impact that it's had on her life and our discussion of physician's failure to recognize the signs of a bleeding disorder.

    Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721 
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    38 mins
  • Growing Up with Factor 1 (Fibrinogen) Deficiency, Surviving Hep C, and Endometrial Cancer: A Conversation with Angel

    Growing Up with Factor 1 (Fibrinogen) Deficiency, Surviving Hep C, and Endometrial Cancer: A Conversation with Angel
    Dec 9 2022

    Angel grew up knowing she had Factor 1 Deficiency, having been diagnosed at a young age. Overall her symptoms have been mild to moderate, but like many women her journey has been a roller coaster. Listen in as we discuss her treatment journey from Cryoprecipitate to now being on prophylaxis with a factor concentrate, how she contracted Hepatitis C and successfully cleared it, and her experience of finding out she had endometrial cancer. She will always speak for awareness of investigating any unusual female symptoms...as she found out that symptoms and a bleeding disorder aren't always directly linked.

     

    Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721 
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    38 mins
  • Clinical Research for the Advancement of Women's Care: A Conversation with Dr. Michelle Sholzberg

    Clinical Research for the Advancement of Women's Care: A Conversation with Dr. Michelle Sholzberg
    Nov 11 2022

    In today's episode I had the pleasure of speaking with my Hematologist, Dr. Michelle Sholzberg. She is a clinician-scientist with a focus on coagulation, the Division Head of Hematology-Oncology and the Medical Director of the Coagulation Laboratory at St. Michael's Hospital. Listen in as we discuss her current research projects that she is focused on as well as a review and discussion of current treatment options used in those with all types of VWD. 

    For more information feel free to contact the Comprehensive Hemophilia Care Centre at St. Michael's Hospital in Toronto.

    https://unityhealth.to/areas-of-care/programs-and-clinics/oncology-and-endoscopy/#st-michaels-hospital-hemophilia-clinic-5

     

    Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721 
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    24 mins

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