In this episode of Patient Innovations, we explore the complexities of Sickle Cell Disease (SCD) through the lens of personal experience, medical expertise, and community advocacy. Our guests include Dennik McBride, a courageous sickle cell warrior, who shares her personal journey living with the condition. Dr. Ashish Gupta from the University of Minnesota, Dr.Gupta largely cares for children and young adults with sickle cell disease who need transplant based therapies. In the episode he provides insight into the latest research and treatment advancements;This episode highlights that there are many challenges, including the implementation of standard guidelines, for adults with sickle cell disease. These include, but not limited to, access to primary and specialty care, transition of care as well as comprehensive sickle cell care. We also have Rae Blaylark, Executive Director of the Sickle Cell Foundation of MN, who highlights the importance of community support, advocacy, and resources for those affected by SCD. Together, they discuss the challenges patients face in navigating healthcare, the impact of SCD on marginalized communities, and the promising future of treatments like gene therapy and bone marrow transplants.

For resources and support, The Sickle Cell Foundation can be accessed at www.sicklecellmn.org . You can calso follow them @sicklecellmn on LinkedIn, FB, IG and Twitter (X).

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