In this episode, we speak with the Brenneman family who lost their father and husband, David, 12 years ago. We discuss the care partner experience of navigating a spouse's sarcoma diagnosis while also raising young children and what it has been like for the family to find connection to David after his passing. The Brenneman family shares about how this experience has fit into their lives and evolved over the years and talk about their unique experience walking the Camino de Santiago to raise awareness and funds in support of the sarcoma community. Thank you to the Brenneman family for sharing their story and allowing us to be a small part of honoring David's legacy.

content warning: death from sarcoma, death of a parent, death of a spouse

AJ's Blog: https://www.200-miles-closer-to-dad.com/

David's Subtype: https://curesarcoma.org/sarcoma-subtypes/alveolar-rhabdomyosarcoma/

https://imermanangels.org

Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704

We're thrilled to welcome Susie Donohue, a uterine leiomyosarcoma survivor, for our third episode! We talk about navigating a new sarcoma diagnosis, what exactly a sarcoma center is, and the decision to disclose or not disclose your diagnosis at work.

Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704

Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/

Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/

Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/

Facebook Group: https://www.facebook.com/groups/512452631597704

Where to connect with Susie:

IG: @susie.donohue

LinkedIn: https://www.linkedin.com/in/susie-donohue-9286579/

FB: https://www.facebook.com/susie.donohue.9

We're thrilled to welcome Jenna Pothier for our second episode! Join us as this DFSP survivor shares the importance of shared decision making between care team, patient, and care partners. She also talks about the challenges of being an adolescent young adult going through a life changing diagnosis during big life transitions, finding supportive communities and purpose in advocacy work, and shares her advice on supporting someone during their sarcoma diagnosis.

Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704

Where to connect with Jenna:

IG: @jennapothier19

TikTok: https://www.tiktok.com/@jpot13