This episode is all about FETO. We hear from 3 moms who have asked the hard questions, done the research, had the procedure and are excited to share their journey with us all.

Continuing with our series on tough questions we are talking about the tough questions parents ask themselves when they are first told their child has CDH. These are questions that maybe you were too embarrassed or even ashamed to ask. Maybe you were thinking you were alone in asking them or maybe you just didn’t feel comfortable sharing these thoughts with anyone. Well we are here, 3 CDH mamas with 3 different perspectives and 3 very different journeys getting real with it all in the hopes you feel validated, encouraged and ultimately a little less alone as you navigate this journey!

On this episode we hear from Brianna Fullmer, mama to CDH Angel Reagan and founder of the Reagan Valeria Foundation. We smile, we cry and we laugh uncontrollably because though this is a story about loss it is first and foremost a story about hope.

In this episode I talk with Savannah Lopez Sotomayor about her beautiful angel baby William Joe. I laughed and I cried, sometimes at the same time as Savannah shared her loss journey. She gets real with her feelings, sharing openly about what helped her process Williams passing and what did not. She also shares the phenomenal ways she has found to keep his memory alive. You won't want to miss this!

Listen to CDH mama Sasha White share her journey with her son, CDH survivor Luka. Sasha shares her story from diagnosis, to wrestling with hospital choice and transfer.

Today we are talking with Shannon Connor, mama to CDH angel Molly. Shannon shares her journey with grief, the amazing friendships she has found along the way and the new venture she has taken on in honor of her CDH warrior.

In honor of heart month we talk with 2 CDH mama's who share the incredible story of their children's extreme ECMO journey's. This includes the longest ECMO run for Dr Kays at JHACH as well as ECMO cannulation directly into the heart... These stories are the extreme of the extreme but both of these kiddos are living proof that there is always reason to hope!

In this episode we chat with 2 veteran CDH and G-tube mamas about their child's journey from CDH diagnosis, G-tube placement to home. They share the ups, downs and in-betweens of the tube feeding journey and provide some practical advice for parents.

For more information on tube feedings visit: thecdhfoundation.org/resources