Radio Rare

By: Rare Cancers Australia
  • Summary

  • Radio Rare is a podcast where we share the stories of those in and around the rare and less common cancer community. Being diagnosed with a rare cancer doesn’t mean you’re alone. Radio Rare will dive into the human stories of the rare cancer experience, the innovation and the advocacy. Addressing the feeling of isolation experienced by so many, we look to create a close community of those affected by rare and less common cancers. Produced by Rare Cancers Australia
    Rare Cancers Australia
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Episodes
  • The Australian genomic landscape and what we can learn from others | Policy Roundtable Series
    Oct 14 2024

    Rare Cancers Australia and Australian Genomics invite you to a policy roundtable series exploring the enablers and barriers to genomic-led cancer care for people diagnosed with rare, less common and complex cancers. Your valuable perspective will contribute to discussions and a report, with practical recommendations for accelerating equitable access to genomic-led cancer care in Australia. Hear from experts in the field and share your own ideas, challenges and opportunities.

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    28 mins
  • Fundraising for treatments only available overseas
    May 30 2024

    Two-year-old Luna’s family is fundraising for treatments only available overseas for her rare childhood cancer, neuroblastoma. They sat down with Gary Hardgrave on the 4BC Radio Drive program to share their experiences.

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    14 mins
  • RCA CEO, Christine Cockburn, interviewed with i98 Power FM radio on the need for a pan-tumour approach to cancer care
    Apr 22 2024

    People living with cancer urgently need action on expanded access to precision therapies

    Over the past two decades, our ability to rapidly obtain genomic information on an individual and their cancer has led to a dramatic shift in how we can diagnose, treat, monitor and prevent cancer, leading to an era of precision oncology.

    With this expanded knowledge of cancer there are several promising treatments that can specifically target the drivers of an individual’s cancer, that are already under review through Australia’s health technology assessment process. Too many people living with cancer in Australia still don’t have access; and they can’t afford to wait.

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    6 mins

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