Powerhouse Podcast

By: United Mitochondrial Disease Foundation
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  • Summary

  • The United Mitochondrial Disease Foundation hosts the Powerhouse Podcast to discuss all things related to mitochondrial disease, research, and the patient journey. Featured guests include patients, caregivers, researchers, physicians and passionate advocates.
    ©2024
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Episodes
  • POWERHOUSE Oct 2024: Olivia Chambers, Paralympic Swimming Gold and Silver Medalist

    POWERHOUSE Oct 2024: Olivia Chambers, Paralympic Swimming Gold and Silver Medalist
    Oct 30 2024
    This month, we meet with Olivia Chambers, a college athlete at the University of Northern Iowa. She has faced many challenges due to multiple mtDNA deletions, which have primarily impacted her eyesight. Olivia, 2024 Paralympic gold and silver medalist, joins us to talk about her passion for distance swimming, being a Paralympian, the onset of mitochondrial disease for her at age 16, and life with vision loss. Don't miss this Powerhouse! 00:00 - 21:00 -- A Passion for Swimming and Being a Paralympian 21:35 - 41:35 -- Vision Loss as a Teen and Finding a Mitochondrial Disease Diagnosis 42:10 - 60:00 -- College Life and the Help and Support of Assistive Tech, Family, and Friends
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    1 hr
  • Powerhouse Special Edition on Advocacy with Miranda Franco

    Powerhouse Special Edition on Advocacy with Miranda Franco
    Sep 30 2024

    On this special edition of the Powerhouse Podcast, Miranda Franco, Senior Policy Advisor for Holland & Knight, joins us for a recap of new movements in mito-related legislation and the ways we could use your help in governmental advocacy for the mitochondrial disease patient community. Take action at umdf.org/advocacy.
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    24 mins
  • Mito Moms for World Mitochondrial Disease Awareness Week

    Mito Moms for World Mitochondrial Disease Awareness Week
    Sep 4 2024

    This latest episode of the Powerhouse Podcast is all about sharing your story and raising mito awareness. For this special edition Powerhouse, we had amazing talks with:

    • Lindzi Scharf, Mito Mom, Journalist and founder of Retaility.com
    • Linda Ramsey, Mito Mom, UMDF Support Ambassador, and 2024 Energy Award Winner
    • Nikki Huggan, Mito Mom, UMDF Support Ambassador, and Vice-Chair of PA's Families to the Max.

    With World Mitochondrial Disease Week 2024 around the corner, we dig deep into all the many ways that we can tell mito stories and pave the way for other patients and families with mitochondrial diseases-- whether in published works, social media sharing, grassroots presentations, or even advocacy work on the state level. #IlluminateTomorrow and Raise your Voice.
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    1 hr and 23 mins

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