Powerhouse Podcast

By: United Mitochondrial Disease Foundation
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  • Summary

  • The United Mitochondrial Disease Foundation hosts the Powerhouse Podcast to discuss all things related to mitochondrial disease, research, and the patient journey. Featured guests include patients, caregivers, researchers, physicians and passionate advocates.
    ©2024
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Hygiene & Healthy Living Nature & Ecology Physical Illness & Disease
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Episodes
  • POWERHOUSE Podcast Nov 2024: Team Activate Goes the Distance

    POWERHOUSE Podcast Nov 2024: Team Activate Goes the Distance
    Nov 26 2024
    On this November's Powerhouse Podcast episode, we're proud to feature runners from our 2024 UMDF Team Activate who fundraised and ran in the Bank of America Chicago Marathon. Listen in as Micah, Lisa, and Aaron share with us their training tips, race day peaks and valleys, and their experiences putting their miles toward the mission of UMDF. If you're interested in going the distance toward treatments and cures for mitochondrial disease like these runners, contact us about a spot on our 2025 Team Activate charity team. Email angela.sommer@umdf.org
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    1 hr
  • POWERHOUSE Oct 2024: Olivia Chambers, Paralympic Swimming Gold and Silver Medalist

    POWERHOUSE Oct 2024: Olivia Chambers, Paralympic Swimming Gold and Silver Medalist
    Oct 30 2024
    This month, we meet with Olivia Chambers, a college athlete at the University of Northern Iowa. She has faced many challenges due to multiple mtDNA deletions, which have primarily impacted her eyesight. Olivia, 2024 Paralympic gold and silver medalist, joins us to talk about her passion for distance swimming, being a Paralympian, the onset of mitochondrial disease for her at age 16, and life with vision loss. Don't miss this Powerhouse! 00:00 - 21:00 -- A Passion for Swimming and Being a Paralympian 21:35 - 41:35 -- Vision Loss as a Teen and Finding a Mitochondrial Disease Diagnosis 42:10 - 60:00 -- College Life and the Help and Support of Assistive Tech, Family, and Friends
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    1 hr
  • Powerhouse Special Edition on Advocacy with Miranda Franco

    Powerhouse Special Edition on Advocacy with Miranda Franco
    Sep 30 2024

    On this special edition of the Powerhouse Podcast, Miranda Franco, Senior Policy Advisor for Holland & Knight, joins us for a recap of new movements in mito-related legislation and the ways we could use your help in governmental advocacy for the mitochondrial disease patient community. Take action at umdf.org/advocacy.
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    24 mins

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