• A Journey Through Lewy Body Dementia with Brooke and Rafael
    Oct 17 2024

    Join our conversation with Brooke and Rafael as they recount their journey from the first signs of dementia to finding the right medical care. Their story is a testament to the power of early intervention and the importance of understanding complex symptoms, such as REM sleep disorder.

    Through honest dialogue, Brooke and Rafael offer a wealth of insights into navigating the challenges of Lewy body dementia, from initial tests like the Montreal cognitive assessment to treatment options such as Aricept. Hear how they worked closely with their neurologist to reach an official diagnosis, and how they've managed to slow Rafael's cognitive decline. Whether you're a caregiver, family member, or someone living with dementia, this episode promises to illuminate the path forward with hope and understanding.

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    14 mins
  • Exercise as Medicine - Janet Kearns' Approach to Conquering Parkinson's
    Feb 27 2024

    When Janet Kearns first faced the reality of Parkinson's, it wasn't just a diagnosis—it was a shadow of her mother's own struggle with the same disease. On the Parkinson's Empowerment Podcast, Janet's profound story unfolds, revealing how denial morphed into determination. Through the echoes of the past and the challenges of a global pandemic, Janet shares how exercise and the solidarity of a community became her cornerstones in the battle against Parkinson's.

    In a candid exchange, we discuss challenges that can arise when mobility challenges are not apparent to those around you. We illuminate the early signals of Parkinson's and Janet's personal tactics for maximizing her medication's potency. Then, pulling on the gloves, we celebrate the lighter side of living with Parkinson's. From 'fighter names' to friendships, Janet and I punch through the notion that this journey is a solitary one. The laughter in a boxing class is just as essential as the jabs and hooks—it's about fighting back with joy.

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    23 mins
  • Val's update 1 year later -Her Knockout Approach to Living with Parkinson's (She is Still Taking her Meds on Time )
    Jan 30 2024

    Val Muse is back, and her story is nothing short of empowering. When we last spoke with her, Val was navigating the early stages of Parkinson's disease, harnessing the power of the LSVT Big physical therapy program to manage her symptoms. Fast forward to today, and Val's journey has led her to the high-energy punches and uppercuts of Rock Steady Boxing. In this intimate conversation, she's here to share how this program has not only ramped up her physical strength but also instilled a mental resilience that's redefining her approach to life with Parkinson's.

    Imagine stepping into a community that fights not just with gloves, but with unwavering support and shared determination. That's the reality Val found in Rock Steady Boxing in Victor, NY, where each jab and hook carry the weight of her indomitable spirit. Val's experience is a powerful testament to the idea that engaging in the activities you're passionate about is a potent prescription for enhancing one's quality of life. She's discovered a newfound vigor and a morning routine that starts with purpose and promise. Join us as Val's infectious enthusiasm punches through the perceived limits of Parkinson's,

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    16 mins
  • Transforming Lives with Parkinson's: The Power of Urban Polling's Activator Poles
    Dec 9 2023

    Ever wondered how a tool as simple as walking poles could transform the lives of those battling Parkinson's disease? Brace yourself for an enlightening conversation with Joy Cochran, a clinical evidence specialist for urban polling. Discover the fascinating history of urban polling and the unique features of activator poles that have become game-changers in our clinical practice. Hear heartening stories of improved posture and relief from joint pain, testaments to the power of these tools.

    Switch gears as we delve into the remarkable benefits of the activator poles for Parkinson's patients. Our experience as physical therapists comes to life through success stories of exercise, balance, and Nordic walking. Learn about the safety features that make these poles a boon for those with tremors or weak grip strength. More than physical aid, these poles are catalysts for improved quality of life and community involvement. Wrap up with us as we advocate for spreading the word on these life-altering resources, and leave feeling inspired by the positive impact of urban polling on those with Parkinson's. Tune in and join us on this journey of discovery and transformation.

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    28 mins
  • How StrivePD is Changing the Game in Parkinson's Treatment
    Oct 22 2023

    You've heard of smartwatches tracking your steps, but what about tracking Parkinson's symptoms? That's the reality with StrivePD, an incredible app developed by the team at Rune Labs. In a unique conversation, Brianna unveils how this free app, compatible with the Apple ecosystem, enables Parkinson's patients to closely monitor their symptoms, including tremors and dyskinesia. Originally created by Aura Oslapas, a PD patient herself, StrivePD was acquired by Rune Labs in 2018. Brianna shares how StrivePD can revolutionize the way patients and clinicians communicate, leading to a more informed health journey. It's time to get savvy about your health, and this conversation is a great start.

    The chat takes a futuristic turn as we plunge into the fascinating world of Rune Labs' brain sense technology. Imagine a world where Parkinson's patients can track symptoms more effectively and clinicians can adjust programming and medications based on the tracking with the StrivePD App ! Well, it's happening. With the integration of fall detection technology and an activity logging system, Brianna highlights how StrivePD provides users with an in-depth understanding of their health. But that's not all; there are exciting developments on the horizon, including the integration of heart rate metrics into the clinician portal. Tune in to learn how technology like StrivePD is not just changing, but truly revolutionizing care and treatment for Parkinson's.

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    21 mins
  • Navigating Swallowing Difficulties in Parkinson's with Brittany Peck, SLP, of BPeck Speech and Swallowing
    Oct 5 2023

    Join us on a fascinating journey with Speech Language Pathologist, Brittany Peck, as we unravel the complexities of swallowing and what people with Parkinson's may be experiencing. Brittany's expertise illuminates how the reduction of dopamine, can lead to a slow-down in the oral musculature, causing difficulties in swallowing. Yet, as we learn, there's a beacon of hope with retraining and awareness.

    We discuss the clinical swallow evaluation process, potential treatments, and even share some handy tricks for taking medication. If you're in a remote location, fret not! Brittany enlightens us about her home-based practice in the Finger Lakes region of New York, and how she's leveraging technology to deliver speech-language pathology services to those in rural and remote areas. Finally, we list some key indicators that could signal swallowing difficulties. So, come aboard and learn how to manage and improve swallowing issues related to Parkinson's.

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    21 mins
  • Constipation and Parkinson's with Dr. Stuart Gillim
    Aug 22 2023

    On today's podcast Dr. Gillum and I discuss the gut brain connection and Parkinson's, constipation and the steps you can take to ameliorate your symptoms and the connection between diabetes and Parkinson disease.

    Dr. Gillim received his medical degree from Stanford University School of Medicine

    And studied internal medicine and gastroenterology at Cornell University in NYC.
    Thank you taking the time to be on the podcast Dr. Gillim!




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    25 mins
  • Val talks about taking her meds on time. What a difference!
    Jan 21 2023

    Val had heard about boxing and Parkinson's and had been meaning to look into the program. She saw the Rock Steady Boxing Victor Magnet on a car at one of her medical appointments, and knew it was a sign. She took a picture of it and gave us a call. The trip to our clinic/gym was her first time meeting other people with Parkinson's. Listen to this episode and learn more about how Parkinson's presented initially and what she is doing about it now.

    Check out our website www.safeathompt.com
    give us a call at (585)398-6050
    or send us an email at robin@safeathomept.com

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    13 mins