On PEP Talks, Emma interviews communications coach and advocate Monica Kleijn Evason. They recall meeting at a cancer conference where survivors' "FUCK cancer" shirts sparked a discussion on disruptive language in advocacy. Monica shares her advocacy journey, prompted by her son's brain tumor diagnosis and their struggles with the medical system. She stresses communication and empathy in healthcare, especially for young survivors post-treatment.

They also discuss emotional regulation for advocates and improved communication between patients, doctors, and pharma. Monica concludes with inspiration from young survivors who find humor in hardship.

Pep Talks, hosted by Emma Sutcliffe, is a podcast series sponsored by the International Society for Patient Engagement Professionals (ISPEP). In a twist, Emma is interviewed by Alexandra Charge, CEO of ISPE, about her new role as Chief Patient Officer.

Emma shares her journey from a medical biochemist to a patient engagement professional, emphasizing the importance of empathy and strategic business practices in the pharmaceutical industry.

The discussion highlights the challenges and responsibilities of patient engagement professionals, the need for professionalization, and the evolving role of patient advocacy. Emma envisions a future where new leaders emerge within the ISPE community, fostering growth and development in patient engagement.

In this episode, Emma interviews Rasmus, the head of communication at James Lind Care, a clinical trial research organization. Rasmus discusses the challenges of patient recruitment for clinical trials, emphasizing the need for increased awareness, education, and simplified communication.

He shares insights on his role in bridging the gap between patients and the pharmaceutical industry, highlighting the importance of understanding patient needs and motivations. Rasmus also talks about the significance of change management in the pharma industry and the necessity of presenting a business rationale for patient engagement.

The conversation underscores the value of diverse perspectives and the impact of effective communication in fostering patient participation in clinical research.