• Navigating the Unpredictable: The Johannes Family’s Cancer Journey with Little INDY Warrior, Lillian

  • Oct 15 2024
  • Length: 19 mins
  • Podcast

Navigating the Unpredictable: The Johannes Family’s Cancer Journey with Little INDY Warrior, Lillian

  • Summary

  • In this episode, host Kayla Keenan interviews Alyssa Johannes, the mother of a cancer warrior named Lillian. They discuss Lillian's cancer journey, including her initial diagnosis of B cell, ALL, her relapse in her central nervous system, and her participation in an experimental treatment called CAR-T. Alyssa shares the challenges and support systems they encountered throughout Lillian's treatment, as well as the emotional impact it had on their family. They also discuss how they talked to Lillian about her illness and treatment, and the perspective shift they experienced as a result of their cancer journey.

    Takeaways

    • Cancer journeys can be unpredictable, with unexpected twists and turns.
    • Support systems, including family and friends, play a crucial role in helping families navigate the challenges of cancer.
    • Being honest and open with children about their illness and treatment can help them understand and cope with the situation.
    • Cancer can change one's perspective on life, leading to a greater appreciation for the little things and a constant state of vigilance.
    • Asking for help and accepting support is important for parents facing a similar situation.

    Watch Lillian's Little INDY Warrior video: https://www.youtube.com/watch?v=n0AgDAQLjDE

    INDY is short for "I'm Not Done Yet," a phrase often said by the late Kyle Strand during his courageous battle with colon cancer. Kyle's four-year journey was both extremely challenging and profoundly beautiful. Though he lost his battle in July 2017, his legacy lives on through his two dying wishes: to establish the INDY Foundation and to inspire others to live every day to its fullest. In August 2017, the INDY Foundation was born, continuing Kyle's mission to support and uplift cancer warriors everywhere. Find more information here: www.indy-foundation.org

    Facebook - https://www.facebook.com/ImNotDoneYetMN

    Instagram - https://www.instagram.com/indyfoundation/

    Join our INDY Tribe - Inner Circle FB Group. A group for those affected by cancer.

    https://www.facebook.com/groups/202854020588761

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