My Macular and Me

By: Macular Society
  • Summary

  • Delve into the world of macular disease with the Macular Society. Join us as we hear from eye care professionals, providing expert insight on the latest developments in research and evolving treatments. Listen as we also share first-hand stories and explore the support available for those living with sight loss. For more information and additional support visit: https://www.macularsociety.org/

    © 2025 My Macular and Me
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Episodes
  • Finding joy after diagnosis
    Jan 16 2025

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    In this episode of the My Macular and Me podcast, we are joined by guests Chris and Dawn who share their journey with macular disease. They talk through their diagnosis and it's impact, as well as how their hobbies have helped them to find joy, adapt, and maintain mental well-being during difficult times.

    Links to share:
    Instagram: Dawn, Chris
    Facebook: Dawn, Chris
    Pathway Yoga YouTube Channel
    Blind Man With a Backpack Blog

    The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

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    46 mins
  • How can gene therapy help those with Stargardt disease?
    Dec 19 2024

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    For this episode of the My Macular and Me podcast, we are revisiting one of talks from Dr Matteo Rizzi, research fellow at UCL Institute of Ophthalmology, as he speaks on Stargardt disease and how it affects vision, as well as the future of gene therapy.

    Dr Matteo Rizzi joined the My Macular and Me podcast with Dr Omar Mahroo earlier this year to discuss photopsia and photophobia in patients with Stargardt disease. If you would like to find out more on this topic, you can listen here.

    For more information on registration, please visit the Macular Society website. Or if you have any questions, please get in touch at help@macularsociety.org

    The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

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    22 mins
  • Can supplements slow the progression of late-stage AMD?
    Dec 5 2024

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    New research has found that taking a daily vitamin and mineral supplement can slow the progression of late-stage dry age-related macular degeneration (AMD), otherwise known as geographic atrophy (GA).

    Dr Tiarnan Keenan from the National Eye Institute joins us to discuss these new findings in more detail and answer your questions.

    Previously, supplements, based on the AREDS2 formula, have only been recommended for those with the earlier stages of AMD. Listen to learn how this promising discovery could help maintain vision and independence longer for those with late-stage dry AMD.

    The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

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    47 mins

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