• 49: Episode 48 - Living with intention and creating a more beautiful life with Amber Bosselman
    Jan 28 2025
    In this Quest Podcast episode, we chat with certified Life Coach who lives with Spinal Muscular Atrophy. Amber Bosselman has devoted her career to providing living skills for individuals with physical disabilities, and helping them find personal fulfillment, and develop strategies to improve their lives and reach their goals. While offering her clients a new perspective and a soft place to land, she joins us to share her experiences, expertise and advice when it comes to navigating life and following your dreams.

    Guests:

    Amber Bosselman is a certified Life Coach and specializes in coaching people with disabilities. She brings a strong clinical background with a degree in Psychology and blends that perfectly with her practical and everyday tools she offers in life coaching. With over a decade of experience studying mental health and the human mind, Amber is committed to helping people with physical disabilities overcome obstacles and increase their independence.

    When not busy helping other people live their best life, Amber loves to read, paint and relax with her husband. She soaks up sunshine wherever possible and aims to spread just as much emotional sunshine to others.

    Connect with Amber:

    • Facebook: https://www.facebook.com/p/Amber-Bosselman-Coaching-100076004193828/
    • Instagram: https://www.instagram.com/amber.bosselman.coaching/
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment & Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    39 mins
  • 48: Episode 47 - Wrapping Up 2024 with Leah and Ira
    Nov 25 2024
    In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Ira Walker. Leah is a dedicated advocate that feels it is important to advocate for yourself and stand up for those that are not able.Ira feels that connecting and sharing his story with others through MDA has been life changing. These Ambassadors join us to share their experiences, expertise, and advice.

    Transcription

    Guests:

    Leah is 17 years old and was born with an ultra-rare form of neuromuscular disease. She is an accomplished actress, dancer, model and adaptive athlete. She has danced on the Lincoln Center stage, walked in New York Fashion Week...twice, and appeared in the Jennifer Lopez movie, Marry Me.

    Connect with Leah:

    • Instagram - @leahj.zelaya

    Ira is a 39-year-old who lives with spinal muscular atrophy (SMA). He’s an avid sports fan, cultural connoisseur of the arts, and an impressive cook who is constantly evolving his culinary abilities. A highly independent and active gentlemen that is living his dream and best life in south Florida while working an exciting career in HR and loves exploring the the sights and sounds of his environment in his sophisticated modified van.

    Connect with Ira:

    • Facebook –https://www.facebook.com/IraWalker321

    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment & Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    44 mins
  • 47: Episode 46 - Creating Beauty from your Dreams with Shakiira Rahaman
    Nov 18 2024
    In this Quest Podcast episode, we chat with the Kira Cosmetics founder and entrepreneur, who lives with muscular dystrophy. Shakiira Rahaman, who founded her make-up line in 2019 after a life changing event, joins us to share her experiences, expertise, and advice when it comes to navigating life and following your dreams.

    Transcript

    Guests:

    Kira Cosmetics was founded by Shakiira Rahaman, a 37-year-old Fl. woman with Muscular Dystrophy. After an extended hospital stay in 2019, she went home and was inspired by a YouTube entrepreneur video. As a former make-up sales rep, she set out to create her first make-up line! Perfect for make-up lovers who love the art of makeup, Kira Cosmetics is cruelty-free, recyclable, and has packaging that becomes decor.

    Connect with Shakiira:

    • Website: https://kiracosmetics.com/
    • Instagram: https://www.instagram.com/p/C2h08KJs8Kx/
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment & Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    27 mins
  • 46: Special Edition - National Disability Employment Awareness Month (NDEAM) Panel for Jobseekers and Employers
    Oct 18 2024
    No show notes for this episode.

    Transcript
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    1 hr and 25 mins
  • 45: Episode 45 - Making Space and Creating Pathways with Keely Cat-Wells
    Oct 16 2024
    In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, public speaker and educator, Keely Cat-Wells. She devotes her time and expertise to creating education and employment opportunities and inclusive spaces for those with disabilities - and delivers advice and inspires action while sharing stories of resilience and positivity. Keely is the founder and CEO of Making Space, a talent acquisition and learning experience platform and a co-founder of Making Space Media, a production company that focuses on increasing representation in TV and film. She joins us to share her experiences, expertise, and advice.

    Transcript

    Guests:

    Keely Cat-Wells is an entrepreneur and Disability Rights Advocate dedicated to driving social, systemic, and economic change. After experiencing a multitude of health issues that resulted in a physical disability, Keely focused her career on advocacy and inclusion in entertainment. She founded a talent representation company that is reshaping the perceptions of disability and has placed thousands of actors with disabilities in on-screen projects. She established Making Space, a talent acquisition and learning experience platform that creates pathways to employment and career advancement for those living with disabilities. Keely partnered with TV host, author, and Disability Rights Advocate, Sophie Morgan, to co-found Making Space Media, which produces film, TV, and promotional content that centers on the disabled voice and recently secured a first-look deal with Reese Witherspoon’s Hello Sunshine company. Keely is a public speaker and staunch advocate for disability rights and mental health awareness. She is a founding member of the #WeThe15 campaign, which is considered the most significant human rights movement in sports history. Keely has presented to national leaders, including President Joe Biden, delivered speeches to the UN and large companies and organizations, and has received numerous awards and honors, including Forbes 30 Under 30 and Great British Entrepreneur of the Year.

    Connect with Keely:

    • https://keelycatwells.com/
    • https://making-space.com/
    • https://www.making-space-media.com/
    • https://www.instagram.com/keely_cat_wells/
    • https://www.linkedin.com/in/keelycatwells/
    • https://x.com/keelycatwells
    • https://www.facebook.com/keely.wells3/
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment & Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    33 mins
  • 44: Episode 44 - Voting Rights and Accessibility
    Oct 3 2024
    In this Quest Podcast episode, we chat with Shaun Hill, MDA’s Manager of Public Policy & Advocacy and Mark Fisher, MDA’s Director of Advocacy Engagement. They join us to share the most recent voting updates, accessibility information, and expertise and advise about MDA's voting program and advocacy efforts. Please join us and make your vote count at https://mda.org/vote.

    Guests:

    Shaun Hill currently serves as Manager, Public Policy & Advocacy for the Muscular Dystrophy Association. Ms. Hill is a veteran government relations professional, who has worked continuously in the healthcare arena, championing causes on behalf of both patients and providers, working through legislative, regulatory, and advocacy channels to impact change. In many of these roles she has led the charge on advocacy campaigns, such as MDA’s current initiative Access the Vote. A native of Washington, DC, she is a graduate of Howard University and has studied political management at George Washington University.

    Mark Fisher is the Director of Advocacy Engagement at the Muscular Dystrophy Association. In this role, Mark leads MDA’s grassroots program and advocacy volunteer efforts. He works to empower advocates and connect them with key decisionmakers in order to advance public policies that improve the lives of the neuromuscular disease community. He previously served as the Digital Grassroots Manager at the American Heart Association and was also a field organizer on a U.S. Senate campaign. Mark earned his Master of Public Policy from American University and is originally from Pittsburgh, PA.

    • For Information About Voting - https://mda.org/vote
    • For Local information about Voting- https://www.vote.org/
    • Join the Grassroots Advocacy Team - https://www.votervoice.net/MDA/register
    Connect with MDA Advocacy:

    • advocacy@mdausa.org
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    40 mins
  • 43: Episode 43 - Disrupting the Narrative
    Jul 8 2024
    In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This trio joins us to share their experiences, expertise, advise and hope when it comes to navigating life and Hollywood, and creating a future that is inclusive of everyone.

    Keep up on the latest information about the movie release at www.goodbadthings.com.

    Transcript

    Guests:

    A Southern California native, Shane Stanger is a filmmaker and entrepreneur whose career began in 2009 in the ICM mailroom before spending two years as an assistant to an agent in the motion picture department. Shane went on to associate produce BERNIE, directed by Richard Linklater, starring Jack Black and Matthew McConaughey. The success of BERNIE paved the way for Shane's role as the lead producer for the independent feature Pretty Perfect.

    In May 2013, Shane founded and launched The Baked Bear, a dessert concept out of San Diego specializing in ice cream sandwiches. In 2016 Shane was a recipient of the Forbes 30 Under 30 Award. By 2021, Shane had opened over 35 Baked Bear locations across 12 states and decided to return to his true passion: filmmaking. Shane enrolled in the prestigious Peter Stark Producing Program at USC’s School of Cinematic Arts and received his MFA in May 2023.

    Good Bad Things is Stanger’s writing and directing debut and during the world premiere at Slamdance Film Festival (2024) won the audience and grand jury awards.

    Connect with Shane:

    • Instagram: @shanestanger
    • Instagram: @goodbadthingsfilm
    Steve Way is a 33-year-old actor, comedian, writer, and speaker. He was born with Muscular Dystrophy and is an activist for disability rights and universal healthcare. Steve can be seen in the Hulu show RAMY and is the executive producer of the award-winning film Good Bad Things.

    Connect with Steve:

    • Instagram: @thesteveway
    • www.thesteveway.com
    • https://thesteveway.substack.com/
    Danny Kurtzman is a physically disabled model, actor, entrepreneur, and advocate for the disabled community. Diagnosed with a muscular dystrophy at a young age, Danny never let his disability stop him from doing anything he put his mind to. After graduating from LMU, he joined the family business becoming the 4th generation in the fashion industry.

    His passion and love for fashion drove him to creative direct, design, market, and grow multiple brands. Today Danny's passion not only lies in fashion, but in making this world a more accessible place for all disabled individuals. Danny uses his platform to spread his disability pride and tell the world that despite being physically disabled that he says “there’s nothing wrong with my body. It is perfect.”

    Connect with Danny:

    • Instagram: @dannykurtzman
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    47 mins
  • 42: Episode 42 - Empowering Individuality with Inclusive Style
    Jun 4 2024
    In this Quest Podcast episode, we chat with the Executive Director of Open Style Lab (OSL), a non-profit organization that is on a mission to make style accessible for everyone, regardless of cognitive and physical abilities. Yasmin Keats has devoted her career to the core functions of research, education, and informing the public about inclusive design. She stresses style empowers people, bringing them joy, identity, and self-expression, and inclusion is at the heart of her work. She joins us to share her experiences, expertise, and advice.

    Transcript

    Guests:

    Yasmin Keats is the Executive Director at Open Style Lab (OSL), A national design award-winning nonprofit organization initiated at MIT in 2014. OSL is dedicated to making style accessible to people of all abilities. Yasmin comes to this field with her experience of living with a physical disability. She has a background in graphic design, architecture, and creative learning.

    Connect with

    • https://www.openstylelab.org/
    • https://www.instagram.com/openstylelab
    • https://www.facebook.com/openstylelab/
    • https://www.linkedin.com/company/open-style-lab/
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks
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    40 mins