Living with XLH

By: XLH Australia Inc.
Listen for free

  • Summary

  • Living with XLH explores the challenges and issues of navigating through a diagnosis of the rare, life-long condition, X-linked Hypophospatemia (XLH). You'll hear from paediatric and adult XLH specialists, as well as from people living with XLH on their different patient perspectives from children, teenagers and adults, plus their family members.
    © 2024
    Show More Show Less
Show More Show Less
activate_Holiday_promo_in_buybox_DT_T2
Episodes
  • Living with XLH: Parenting a child with a rare disease

    Living with XLH: Parenting a child with a rare disease
    Nov 23 2024

    This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.

    Topics discussed:

    1. The journey to diagnosis
    2. Parenting a child with a rare disease
    3. Navigating healthcare and advocacy

    Links mentioned in this episode: www.xlhaustralia.com

    This podcast is hosted by ZenCast.fm
    Show More Show Less
    38 mins
  • Living with XLH: Experiences from XLH India

    Living with XLH: Experiences from XLH India
    Oct 21 2024

    This week, XLH Australia President Sandy Bevc and Vice President Naomi Ford are joined by Prakalp Sudhakar who is the founder and chair of XLH India.

    Topics discussed:

    1. XLH journey as a spontaneous case
    2. Living healthy
    3. XLH India

    Links mentioned in this episode:

    • http://xlhaustralia.com
    • http://xlhindia.org

    This podcast is hosted by ZenCast.fm
    Show More Show Less
    19 mins

What listeners say about Living with XLH

Average customer ratings

Reviews - Please select the tabs below to change the source of reviews.

Audible.co.uk reviews

Amazon reviews
No Reviews are Available