Rare Living with Giusiana explores the challenges, triumphs, and realities of life with rare diseases and chronic illness. Join host Giusiana as she sits down with inspiring guest speakers - patients, caregivers, advocates, and experts - to share heartfelt stories, insights, and resources. Together, they navigate the complexities of living rare, building understanding, and fostering community. On todays solo episode, we dive into a not-so-fun side of life with chronic illness, and how the lack of autonomy over your own body and the feeling of being less than human can impact our mental wellbeing. Episodes will be released monthly, with some bonus episodes along the way. We can't wait to have you walk alongside us and learn to Live Rare. You can find Giusiana on Instagram and TikTok here

Rare Living with Giusiana explores the challenges, triumphs, and realities of life with rare diseases and chronic illnesses. Join host Giusiana as she sits down with inspiring guest speakers—patients, caregivers, advocates, and experts—to share heartfelt stories, insights, and resources. Together, they navigate the complexities of living rare, building understanding, and fostering community.

Episodes will be released monthly, with some bonus episodes along the way. We can’t wait to have you walk alongside us and learn to Live Rare.

You can find Giusiana on Instagram and TikTok here:

https://linktr.ee/giusianahttps://linktr.ee/giusiana