In this inspiring episode of the IDD Health Matters Podcast, Dr. Craig Escude is joined by three dedicated occupational therapists from UC Health at the University of Colorado. Kelly Corley, Brie Williams, and Margaret Reese share their journeys into the field of occupational therapy and their specific involvement with individuals with intellectual and developmental disabilities (IDD). They delve into the details of the Sunflower Program, an initiative they’ve pioneered to enhance the hospital experience for patients with IDD. The therapists discuss innovative methods they employ, such as holistic evaluations and tailored environmental adjustments, to ensure comprehensive care. This conversation not only highlights the significance of inclusive health practices but also serves as a beacon for other institutions aiming to improve health equity. Tune in to learn how the Sunflower Program is making a meaningful difference in the lives of patients by integrating sensory considerations, behavioral plans, and a multidisciplinary approach to patient care.

In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Bethany Toledo and Becky Watson from the Ohio Alliance of Direct Support Professionals (OADSP). Together, they discuss the vital role of Direct Support Professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Bethany and Becky share OADSP's mission to educate, elevate, and empower DSPs through innovative programs like DSP University, which introduces high school students to the profession via education and hands-on experience.

Explore the credentialing pathways, leadership development initiatives, and advocacy efforts that are transforming the DSP field. From state-wide programs like the DSP Experience to leadership retreats like Launchpad, this episode highlights how OADSP is elevating DSPs and strengthening the IDD community. Bethany and Becky also emphasize the importance of recognizing health destabilization in individuals supported by DSPs and the value of self-care for those in the field.

Whether you're a current DSP, exploring the profession, or seeking to implement similar programs in your area, this episode offers invaluable insights and resources. For more information, visit oadsp.org or explore free tools on OADSP TV Plus. Don’t miss this inspiring conversation about building a stronger, healthier future for the IDD community!

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé sits down with Dr. David Fray, a trailblazer in dentistry and healthcare for individuals with intellectual and developmental disabilities (IDD). Dr. Fray shares his inspiring journey, from growing up in a disability-friendly household to a career that has spanned private practice, teaching, global health initiatives, and leadership roles in state and international healthcare systems.

Together, they discuss the importance of collaborative care, the need for person-centered and lifespan-focused health planning, and the transformative power of cultural empathy in supporting individuals with IDD. Dr. Fray also highlights his work with the American Academy of Developmental Medicine and Dentistry (AADMD) and the impact of global initiatives in advancing healthcare equity.

Don’t miss this enlightening conversation filled with practical insights, personal stories, and a call to action for a more inclusive healthcare system.

In this special episode of IDD Health Matters, Dr. Craig Escudé is joined by John Dickerson, a lifelong advocate and innovator in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). Recorded live at the NASDDDS conference in Portland, Oregon, John shares his inspiring journey that began in 1973 with The Arc, his commitment to empowering individuals with IDD, and the pivotal moments that shaped his career.

John discusses the creation of Quillo, a transformative platform designed to inspire and educate families, individuals, and staff through microlearning. Learn how Quillo is addressing key challenges such as staff turnover, communication gaps, and the need for person-centered approaches in disability services.

John also shares profound insights on advocacy, positivity, and finding joy in everyday moments. His practical advice, including lessons from positive psychology and the importance of being present, will leave you inspired to make a difference in your community.

Tune in to discover how small changes and innovative tools can lead to big impacts in the lives of individuals with IDD and those who support them.

For more information on Quillo, visit MyQuillo.com.

Show Notes:

• Learn about Friends for Life Residential Care: friendsforliferc.com
• Explore tools to improve health equity for individuals with IDD: ReplacingRisk.com

Don’t miss this heartfelt conversation filled with wisdom, optimism, and actionable strategies to create a better future for all.

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé welcomes Kelley Shepherd, a dedicated Direct Support Professional (DSP) with over 15 years of experience. Kelley shares her perspective on what it means to truly support individuals with intellectual and developmental disabilities (IDD) in living their best lives.

From advocating for dignity of risk to respecting personal choices and supporting meaningful growth, Kelley emphasizes the importance of seeing every individual’s unique potential. She shares inspiring stories of empowerment, such as helping individuals explore new experiences and advocating for person-centered care during healthcare visits.

Kelley also highlights the often-invisible yet critical role of DSPs in ensuring individuals with IDD thrive, describing her work as "stepping into the shadows so those she supports can shine in the light." Her three key tips—embracing new experiences, recognizing everyone's gifts, and standing up for oneself—are valuable lessons for anyone involved in this field.

Join us for this heartfelt conversation that sheds light on the profound impact of DSPs and celebrates the small but significant victories that make a difference in the lives of individuals with IDD.

In this heartfelt episode of IDD Health Matters, Dr. Craig Escude sits down with Deb Davis, a dedicated nurse and advocate for individuals with intellectual and developmental disabilities (IDD). Deb shares her inspiring journey into the field of IDD support, reflecting on how she found her calling and became a champion for person-centered care.

Deb discusses the challenges of working in this field, including her early experiences, the importance of person-centered thinking, and how she overcame feelings of being unprepared to become an expert through relentless learning and certification with the Developmental Disabilities Nurses Association (DDNA). She also highlights the transformative power of listening and observing to truly understand and support individuals, particularly those who communicate in unique ways.

Listeners will gain valuable insights into balancing what is important to a person versus what is important for a person, the significance of people-first language, and how small shifts in perspective can foster inclusion and dignity. Deb’s passion, humor, and wisdom make this episode a must-listen for anyone involved in supporting individuals with IDD.

Tune in to hear why Deb believes this field attracts “the best people in the world” and how her commitment to this work continues to make a lasting impact—even in retirement.

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé is joined by Julie Foster Hagan, Louisiana’s State Director of Developmental Disability Services. Recorded live from the NASDDDS conference, Dr. Escudé and Julie discuss the vital work being done to enhance health equity and employment opportunities for individuals with intellectual and developmental disabilities. Julie shares insights into Louisiana’s health equity initiatives, including a strategic focus on data collection and the role of Health Equity Action Teams within the state’s Department of Health. She highlights the impact of the American Rescue Plan Act, enabling projects focused on improving service accessibility and vocational programs. Julie also delves into the importance of integrating people with disabilities into the broader community, emphasizing dignity, respect, and person-centered support. She discusses Louisiana’s innovative programs, such as Operation House Call, which trains medical residents to better understand the unique experiences of individuals with disabilities. The episode wraps up with Julie’s three key insights on advancing support and advocacy in the field, including promoting community awareness, expanding employment opportunities, and honoring individual choice in all aspects of life. Tune in for an inspiring look at transformative initiatives that aim to foster a more inclusive and supportive community for all.

In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii.

Mary and Dr. Escudé dive into the critical importance of person-centered practices and how a preventative, systematic approach to healthcare can vastly improve outcomes for individuals with IDD. They discuss the concept of “diagnostic overshadowing,” where medical professionals might attribute symptoms solely to a disability rather than exploring underlying health issues. By encouraging more training and awareness among health practitioners, Mary and Dr. Escudé advocate for a future where IDD patients receive the comprehensive care they deserve.

The episode also highlights Mary’s work with the National Association of State Directors of Developmental Disabilities Services (NASDDDS). She explains how the organization provides invaluable federal-level advocacy, technical support, and guidance to help state agencies better serve their communities. Reflecting on the collaboration during the COVID-19 pandemic, Mary shares her belief in the power of partnerships and the importance of balancing dedication to work with personal well-being.