Heart Failure and Beyond - Patient Fuelled Podcast

By: Pumping Marvellous the UK's Heart Failure Charity. Fuelled by patients.
  • Summary

  • This Podcast has been brought to you by the Pumping Marvellous Foundation the UK's Heart Failure Charity. In our series of Podcasts, talking to people about heart failure, we look beyond the cardiologist and delve into what makes people tick, what’s their “Secret Sauce” the Elixir that drives people to overcome and conquer challenging situations in their life.
    Pumping Marvellous, the UK's Heart Failure Charity. Fuelled by patients.
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Episodes
  • Heart Failure: Breathlessness, Fatigue, and Daily Challenges - the patients view
    Feb 7 2025

    Presented in collaboration with The Pumping Marvellous Foundation, this podcast aims to create a more compassionate, supportive environment for those living with heart failure.

    By tuning in, you’ll gain deeper insights, discover valuable resources, and become part of a community dedicated to hope, resilience, and proactive change.

    You Will Hear From:

    • Individuals Living with Heart Failure – Real, raw, and unfiltered perspectives on fatigue, breathlessness, and the daily challenges they face.
    • Carers and Family Members – Honest accounts of the emotional toll, constant worry, and sense of isolation that come with supporting a loved one.
    • Peer Support Advocates – How community groups offer relief from isolation, shared coping mechanisms, and a safe space to be heard and understood.

    You Will Learn About:

    • Daily Living Challenges – How basic tasks like cooking, laundry, or even showering can become monumental hurdles—and the innovative strategies people use to manage them.
    • Emotional and Psychological Impact – Firsthand stories of anxiety, fear, and the uncertainty of coping with heart failure in a healthcare landscape that often drops off after discharge.
    • Misunderstandings and Stigma – The frustration of appearing “fine” on the outside while battling invisible symptoms, and why raising awareness is so crucial.
    • Resilience and Adaptation – The inspiring ways individuals take ownership of their condition, finding solutions, advocating for themselves, and refusing to give up.
    • Carer Experiences – Unique insights into the pressures carers face, and the resources and support systems designed to ease their load.
    • Holistic Approaches – Why listening to lived experiences is vital for building empathy, offering meaningful support, and improving overall care.

    Why It Matters:

    • This podcast highlights the immense value of community and shared experience, turning isolation into collective strength.
    • You’ll hear about the ongoing search for better healthcare, from immediate care to long-term resources for individuals and carers alike.
    • Empathy and Understanding are at the heart of every conversation, offering a blueprint for how friends, family, and healthcare professionals can help.


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    14 mins
  • Heart to Heart: Thriving with Heart Failure – Your Guide to Living Well
    Dec 20 2024

    We’re so excited to have you here as we kick off another insightful and empowering episode. And guess what? We’re introducing our incredible new presenters—give a huge round of applause to Fred and Daphne! 🎙️👏

    Fred and Daphne are here to guide you through today’s topic with energy, compassion, and expertise. Together, we’ll explore everything you need to know about Heart Failure with reduced Ejection Fraction (HFrEF)—from understanding the condition to learning how to thrive with it.

    This episode is packed with valuable insights, covering what HFrEF is, how it’s diagnosed, available treatments, and practical tips for managing symptoms like fatigue, swelling, and breathlessness.

    So settle in, get ready to be inspired, and let Fred and Daphne take you on a journey to living well with heart failure. Let’s dive in!

    Remember: This podcast is for informational purposes only and does not replace medical advice. Always consult your healthcare professional with any concerns or questions about your health.

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    19 mins
  • Let's discuss our marvellous pocket guide to Heart Failure ....
    Dec 20 2024

    🎉 Welcome to our marvellous podcast, powered by AI and driven by the voices of patients! 🎉

    We’re thrilled to have you join us on this incredible journey of discovery, learning, and connection. And guess what? We’ve got something extra special for you—please give a warm welcome to our brand-new presenters, Fred and Daphne! 🎙️👏

    Fred and Daphne are here to guide you through captivating stories, insightful discussions, and expert advice that’s both empowering and inspiring.

    In today’s episode, we’re diving into an essential topic: heart failure, also known as “heart inefficiency.” Together, we’ll uncover its causes, symptoms, and treatments, offering valuable insights for anyone affected by or curious about this condition.

    We’ll break down the common symptoms, like fluid retention, extreme tiredness, breathlessness, and persistent coughing, and how they might sometimes be linked to other conditions like COPD. Plus, we’ll explore the underlying causes, from coronary heart disease and high blood pressure to factors like obesity, anemia, excessive alcohol consumption, and even high lung pressure.

    You’ll learn about the importance of early diagnosis with tools like NT-proBNP blood tests, ECGs, ECHOs, and MRIs, and we’ll debunk the myth that a heart failure diagnosis means your heart is about to stop. Most importantly, we’ll stress that only a specialized heart failure cardiologist can provide an official diagnosis.

    But that’s not all—this episode will dive into treatment options, self-management strategies, and the latest advancements in care. You’ll also hear moving stories from patients who’ve faced heart failure and gain insights from experts working on the cutting edge of heart health.

    So sit back, relax, and get ready for an episode packed with knowledge, inspiration, and a whole lot of heart. Let’s get started! 💓

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    13 mins

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