Episodes

  • Eye on the Cure Podcast | Episode 76: The Lemay-Pelletier Family

    Eye on the Cure Podcast | Episode 76: The Lemay-Pelletier Family
    Nov 13 2024
    When the Lemay-Pelletier family from Montreal learned that three of their four children were losing vision from retinitis pigmentosa, they made the bold decision to spend 15 months traveling the world to give their kids as many visual memories as possible. Podcast host Ben Shaberman talks to the family about their many incredible adventures and the National Geographic documentary (to stream on Disney+ in late 2024) that beautifully captured the journey.
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    29 mins
  • Atsena’s LCA1 Gene Therapy Licensed by Nippon Shinyaku for Markets in US and Japan

    Atsena’s LCA1 Gene Therapy Licensed by Nippon Shinyaku for Markets in US and Japan
    Nov 13 2024
    The companies are planning a Phase 3 clinical trial for the promising gene therapy.
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    4 mins
  • BlueRock’s Photoreceptor Cell Therapy to Move into Clinical Trial

    BlueRock’s Photoreceptor Cell Therapy to Move into Clinical Trial
    Oct 30 2024
    The Foundation funded Dr. David Gamm for development of the induced pluripotent stem cell approach to be used in the trial.
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    2 mins
  • Kiora Receives Authorization for Phase 2 Clinical Trial of its Photoswitch for Advanced RP

    Kiora Receives Authorization for Phase 2 Clinical Trial of its Photoswitch for Advanced RP
    Oct 29 2024
    The 36-participant trial will take place at multiple sites in Australia.
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    4 mins
  • Eye on the Cure Podcast | Episode 75: Sharon King

    Eye on the Cure Podcast | Episode 75: Sharon King
    Oct 25 2024
    Sharon King, co-founder and president of Taylor’s Tale, talks to host Ben Shaberman about her family's journey when her daughter Taylor was diagnosed with Batten disease, a life-limiting, neurodegenerative disease that includes vision loss as a symptom. Taylor’s Tale is raising awareness of, and research funding for, Batten disease. Sharon is also a tireless advocate for the needs of the rare disease community.
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    38 mins
  • Opus Genetics, Ocuphire Merger to Boost Advancement of Several IRD Gene Therapies

    Opus Genetics, Ocuphire Merger to Boost Advancement of Several IRD Gene Therapies
    Oct 23 2024
    Merger will provide additional capital for gene therapy development.
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    3 mins
  • #ShareYourVision | White Cane Day

    #ShareYourVision | White Cane Day
    Oct 15 2024
    #WhiteCaneDay is here! Let's celebrate the strength and independence the white cane symbolizes! Do you use a white cane or other tools? Share your story with #ShareYourVision! www.FightingBlindness.org/ShareYourVision
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    1 min
  • Safety Clinical Trial Launched for Usher Syndrome 3 Drug

    Safety Clinical Trial Launched for Usher Syndrome 3 Drug
    Oct 11 2024
    Researchers hope the molecule will slow the vision and hearing loss associated with USH3.
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    3 mins