• FIECON Patient Perspectives

  • By: FIECON
  • Podcast

FIECON Patient Perspectives

By: FIECON
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  • Summary

  • In our series of podcasts, FIECON team members engage with patient advocates and thought leaders to explore the burden, unmet needs, patient journey, and potential future treatments for specific diseases, with the aim of gaining a deeper understanding of the patient's perspective, particularly for rare diseases. At FIECON, we are dedicated to ensuring that life-changing treatments reach the patients who truly need them, while also increasing awareness and amplifying the patient voice to make a meaningful difference.
    FIECON
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Biological Sciences
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Episodes
  • The patient journey | Citrullinaemia Type 1

    The patient journey | Citrullinaemia Type 1
    Oct 21 2024

    In this episode of, Daniel Evans , HEOR Associate at FIECON, speaks with Charlotte Keys, a patient advocate, whose son Lucas was diagnosed with Citrullinaemia Type 1, and Jonathan Alexander Gibson, Campaigns Lead at Metabolic Support UK .

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    26 mins
  • The patient journey | Sickle cell disease

    The patient journey | Sickle cell disease
    Jul 19 2024

    In this episode, Tyler Piazza, BD Director at FIECON, hosts an insightful interview with Kevin Wake, CMR, CHW, M.S., a sickle cell disease patient advocacy leader and a health outcomes industry expert.

    Kevin, who was diagnosed with sickle cell disease at nine months old, is now the president of URIEL E OWENS SICKLE CELL DISEASE ASSOCIATION OF THE MIDWEST and serves on the board of directors for the International Consortium for Health Outcomes Measurement (ICHOM).
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    32 mins
  • The patient journey | Metastatic breast cancer

    The patient journey | Metastatic breast cancer
    Jun 18 2024

    In this episode Karl Freemyer, BD director at FIECON, is speaking with Emma Chaffin about her experience living with the metastatic breast cancer as a biopharmaceutical executive.


    Emma is a resilient breast cancer survivor who was diagnosed with stage 4 breast cancer five years ago at the age of 41. Facing a daunting prognosis and a treatment plan focused on palliative care, she defied the odds, with only a 22% chance of surviving five years.

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    42 mins

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