A crossover episode with Stewart Liang of Heart2Hearts

In this special crossover episode of The 1% Heart, I’m joined by Stewart Liang, the UK-based advocate and creator of the Heart2Hearts podcast. We take a deep dive into the contrasting landscapes of CHD care in the United States and the United Kingdom, exploring how healthcare systems and costs impact patient experiences on both sides of the Atlantic.

Our conversation covers the origins of Heart2Hearts, created during the pandemic as a space for sharing patient stories with a relaxed, approachable style. Stewart shares how streamlined continuity of care in the UK contributes to positive patient experiences, while we discuss the challenges in the US, where high healthcare costs and frequent provider changes often complicate the transition from pediatric to adult care. We also emphasize the power of community and advocacy, examining how both Heart2Hearts and The 1% Heart aim to foster a supportive network for CHD patients and families.

This episode underscores the shared struggles and hopes within the CHD community, as well as the importance of fundraising and advocacy to improve care quality worldwide. Stewart’s belief in the impact of storytelling offers a hopeful reminder: sharing experiences can provide patients with connection, comfort, and encouragement, no matter where they are.

Disclaimer & Trigger Warning: Nothing in this episode constitutes medical advice. These are our personal experiences, opinions, and stories. This podcast contains honest discussions of medical trauma, adult language, and adult content.

Listener discretion is advised.