• Episode #34 | From Brain Fog to Clarity: Finding Voice and Purpose w/ Alanna Yee

  • May 29 2024
  • Length: 33 mins
  • Podcast

Episode #34 | From Brain Fog to Clarity: Finding Voice and Purpose w/ Alanna Yee

  • Summary

  • In this episode, we are featuring Alanna Yee.

    The onset of autoimmune encephalitis and the frustrations leading to her diagnosis would change her life in ways she never could have imagined. These experiences inspired Alanna to begin sharing her own story to help others navigate similar challenges.

    Alanna generously shares her insights on how to effectively tell personal health stories. She guides us on where to begin, how to strike a balance, and how to respect our own privacy when sharing such personal narratives. Her perspective on the therapeutic value of sharing patient experiences and its potential to drive progress for rare diseases is truly enlightening.

    ABOUT US:

    The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and was made possible with the generous support of Genentech.

    SOCIAL & WEBSITE:

    Alanna Yee

    Facebook - https://www.facebook.com/wherearemypillows

    Instagram - www.instagram.com/wherearemypillows

    Twitter - twitter.com/wampillows

    Demystifying NMO podcast

    Instagram - www.instagram.com/demystifying_nmomog

    Twitter - twitter.com/DemystifyingNMO

    The Sumaira Foundation

    Website - www.sumairafoundation.org

    Facebook - www.facebook.com/TheSumairaFoundation

    Voices of NMO & MOG - www.sumairafoundation.org/awareness/voices-of-nmo/

    TIMESTAMPS/TOPICS:

    00:01:27 Alanna Yee

    00:08:08 How To Start Sharing Our Experiences

    00:11:45 More Than Words, Other Ways To Tell Our Stories

    00:16:11 Facts & Emotions

    00:23:53 Authenticity And Privacy

    00:29:41 Advice For People Considering Sharing Their Health Stories

    ADDITIONAL LINKS

    The profoundly personal side of rare disease: Humanizing the therapeutic journey of patients from Science Magazine, a peer-reviewed academic journal by the American Association for the Advancement of Science. t.ly/Llg1U

    SUPPORT THE PODCAST

    Donate to Illuminate

    https://www.sumairafoundation.org/advocacy/donate/

    CREDITS:

    Producer & Host - Brian Dawson

    Music - Denys Kyshchuk from Pixabay

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