Episode #31 | EUPATI Education in Action: Leda's Path to Patient Advocacy

In this episode, we delve into the world of patient advocacy with Leda Bresnov. Leda shares her transformative journey following her NMO diagnosis and the pivotal role patient advocacy and education played in reshaping her life. From her initial involvement as the Denmark Ambassador with the Sumaira Foundation to her experiences in EUPATI’s Patient Academy, Leda's dedication to raising awareness and empowering fellow patients is making a significant impact in healthcare. Join us as Leda offers her insights into the power of patient involvement in healthcare decision-making, highlighting the importance of education and advocacy in shaping the future of healthcare.

ABOUT US:

The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and

was made possible with the generous support of Genentech.

SOCIAL & WEBSITE:

Leda Bresnov

Website - https://www.sumairafoundation.org/ledas-nmo-story-i-want-to-live-while-i-live/

Instagram - https://www.instagram.com/bresnov/

Twitter -https://twitter.com/Bresnov

Demystifying NMO podcast

Instagram - https://www.instagram.com/demystifying_nmomog

Twitter - https://twitter.com/DemystifyingNMO

The Sumaira Foundation

Website - https://www.sumairafoundation.org

Facebook - https://www.facebook.com/TheSumairaFoundation

TIMESTAMPS/TOPICS:

00:01:14 Leda Bresnov

00:04:36 EUPATI Patient Expert Training Programme

00:07:21 Patient Expert Training Programme

00:11:02 Patient Input and Drug Development

00:23:39 Self-Advocacy & Involvement in Healthcare Decision-Making

LINKS:

EUPATI - https://eupati.eu/

European NMOSD Toolkit - https://www.nmosd-in-focus.com/-/media/Themes/Horizon/nmosd-in-focus-com/nmosd-in-focus-com/Documents/European-NMOSD-Patient-Toolkit.pdf

SUPPORT the Podcast

Donate to Illuminate

https://www.sumairafoundation.org/advocacy/donate/

CREDITS:

Producer & Host - Brian Dawson

Music - Denys Kyshchuk from Pixabay