Hello, lovelies. My name is Arti Shah, and welcome to another episode of A Ray of Sunshine, a journey of an endo warrior and everything in between.
This episode deals with pain in Endometriosis. Each patient endures a specific type of pain that is personalized and different. The best way I can describe my pain is that it feels like a barbed wire wrapped around your organs, and then being juiced through a vacuum suction whilst being set on fire at the same time.
Some common types of pain are felt by Endo patients, although the levels of pain can vary. These are back pain, pelvic pain, neuropathy, pain during intercourse, pain with urination, thoracic pain, and rectal pain. The pain levels and symptoms of endometriosis are exaggerated when on menstruation and even outside of menstruation.
I talk about the different types of pain, how the pain often gets misdiagnosed and different ways to manage and deal with it.
We also hear from following Endo warriors about their backgrounds and stories, as each Endo patient experiences the symptoms uniquely:
Njambi Koikai, Endo Champion, Creative Artiste and leader
Esther Mbugua-Kimemia, Endo Ambassador, Menstrual Cycle Coach, Author and Teen Coach
Doris Murimi, Founder of Endo Sisters East Africa Foundation, Author and member of the World Endometriosis Society
Disclaimer: The information on this podcast is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment.
The transcript of the first few minutes of this podcast is presented below:
Hello, lovelies. My name is Arti Shah, and welcome to another episode of A Ray of Sunshine, a journey of an endo warrior and everything in between. Welcome home.
In today's episode, we discuss pain with endometriosis and what a typical day looks like with pain for me. Endometriosis pain is hard to explain to people who have never experienced it. This is because each patient with endometriosis will endure their specific type of pain. It is very personalized and is different for each individual.
For some, it is also very difficult to distinguish exactly where the endo pain is coming from. The reason why it can be difficult is because endometriosis pain can affect various parts of your body at different times and may feel non-specific. The pain location usually results from where the endometriosis tissue resides inside the body.
We are often asked what endometriosis pain feels like. This is difficult to explain, but how I describe it is that the pain feels like a barbed wire wrapped around your organs and then being juiced through a vacuum suction whilst being set on fire at the same time. Unlike period cramps, pain with endometriosis is not just limited to the area surrounding the uterus.
Endo patients often experience the typical pelvic pain, abdominal pain, pain during bowel movements, pain during or after intercourse, pain with urination, thoracic pain, rectal pain, leg pain, sciatic pain, head pain, and more. The pain levels and symptoms of endometriosis are exaggerated when on menstruation and even outside of menstruation.
The specific types of pain with endometriosis are different according to the specific areas it has affected. Back pain is very common with endo because endometriosis growths can stick to the front of your pelvic cavity or your lower back, causing very extensive back pain, which is deep within the body and can result in sciatic pain.
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