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Disclaimer: The views and opinions expressed in this episode are those of the individual speakers and do not necessarily reflect the official policy or position of the Hereditary Neuropathy Foundation. This episode may contain discussions of political viewpoints that are personal to each guest. Listeners are encouraged to form their own opinions based on various perspectives.

In this Episode:

What if the key to championing disability rights and political activism lies in the experiences of a 22-year-old trailblazer? Meet Cassidy Huff, a remarkable disability rights activist, actress, and social media influencer. Cassidy’s life is a testament to resilience and passion, having faced 41 spine surgeries and living with Conrad-Hierman syndrome, yet never wavering in her pursuit of the arts. From serenading crowds of 17,000 at just four years old to leading grassroots movements, Cassidy’s story is one of extraordinary grit and inspiration.

Our conversation with Cassidy dives into the critical role of representation in media and politics. She shares her journey from a passionate performer to the executive director of the Disabled Voters for Harris campaign, illustrating the profound impact of disability advocacy in the electoral process. Discover the broader implications of disability rights and how every political decision can affect the disabled community, as Cassidy highlights the urgency of accessible healthcare and anti-discrimination measures.

We also tackle the pressing issue of voting accessibility. Cassidy provides practical advice for ensuring ADA compliance at polling places and empowers listeners with strategies to overcome barriers, whether through curbside voting or early absentee ballot applications. Concluding with a heartfelt discussion on self-acceptance, we celebrate the powerful messages of embracing one's disability and the potential for future leadership that Cassidy embodies. Don’t miss this inspiring and informative episode that highlights both the personal and political aspects of disability advocacy.

• Learn more about Disabled Voters for Harris
• Follow Cassidy on Instagram & TikTok
• Connect with Cassidy on LinkedIn
• Visit Cassidy’s Website
• Book an EmBRACE It Workshop
• Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.com
• Find more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.org
• Follow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis

Hosted by Lainie Ishbia and Estela Lugo.

Embrace It is produced by Launchpad 516 Studios.

For sponsorships and media inquiries, drop an email to: embraceit@lp516.com

Subscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id

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What if you could lead an entire team, present complex ideas, and engage in high-stakes discussions without ever speaking a word? This episode of the Embrace It podcast introduces you to Delaney Novor, an inspiring young leader who has mastered this art. As the Director of Product Management at the National Apartment Association, Delaney uses cutting-edge text-to-voice technology to navigate her professional and personal life seamlessly. Learn how she overcame communication barriers caused by dystonia and revolutionized her career, making her a beacon of empowerment for underrepresented professionals.

From her first encounter with assistive technology in middle school to the sophisticated Speech Ninja platform she uses today, Delaney shares her transformative journey in an authentic and compelling manner. She recounts her experiences with a high school transcriber and the pivotal moment a remote job led her to fully embrace text-to-voice tools. Delaney’s story is not just about technology; it’s about resilience, innovation, and redefining what’s possible. This episode is a must-listen for anyone curious about the intersection of tech and accessibility, and how it can enable everyone to work and live on their own terms.

• Follow Delaney on Instagram
• Connect with Delaney on LinkedIn
• Visit Delaney’s Website
• Book an EmBRACE It Workshop
• Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.com
• Find more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.org
• Follow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis

Hosted by Lainie Ishbia and Estela Lugo.

Embrace It is produced by Launchpad 516 Studios.

For sponsorships and media inquiries, drop an email to: embraceit@lp516.com

Subscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898

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What if an initial misdiagnosis at the age of 13 led you down a winding path of medical challenges and remarkable resilience? This episode features Cori Fischer, a longtime member of our Trend-Able community, who reveals her incredible journey from being incorrectly diagnosed with dystonia to uncovering the true cause of her symptoms—a tethered spinal cord. Cori takes us through her experiences with multiple surgeries, and recoveries, and shares the profound emotional and physical toll that came with waking up with minimal sensation and movement from the waist down.

Cori's story is not just one of medical challenges but also a testament to her unwavering determination and advocacy. Transitioning from a college freshman to an occupational therapy (OT) student, Cori faced the life-altering challenge of adapting to life in a wheelchair after 14 surgeries. With the incredible support of her family, especially her sister, she overcame significant obstacles to return to school and pursue her aspirations. Cori’s unique perspective as an OT in a wheelchair allows her to deeply connect with her patients, offering them comfort and inspiration through her lived experience.

This heartfelt conversation also delves into the valuable lessons Cori has learned about resilience, support systems, and the importance of community. She emphasizes embracing imperfections, recognizing the value of mentors, and finding strength in others' struggles. Tune in to be inspired by Cori’s journey and the profound impact of sharing and learning from each other’s stories.

• Follow Cori on Instagram
• Connect with Cori on LinkedIn
• Watch Cori’s Graduation speech
• Learn more about SMERF.org
• Book an EmBRACE It Workshop
• Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.com
• Find more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.org
• Follow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis

Hosted by Lainie Ishbia and Estela Lugo.

Embrace It is produced by Launchpad 516 Studios.

For sponsorships and media inquiries, drop an email to: embraceit@lp516.com

Subscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898

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Join us for an inspiring conversation with Lacey Nager Ammerman, a Confidence and Certified Body Image Coach, as we explore the theme of becoming unstuck while living with a disability. Lacey, diagnosed with a chronic health condition at the age of 12, shares her personal journey of overcoming body image challenges and the fear of being seen. She shares her struggles and triumphs in dating, business, and self-acceptance.

Lacey's story is one of resilience and empowerment, highlighting the importance of confidence in achieving our goals, whether creating a successful business or finding a loving relationship. With over eight years of experience in coaching and entrepreneurship, Lacey provides valuable insights and practical advice for women facing similar challenges.

Tune in to hear Lacey's motivational journey and discover how you can show up confidently in your own life, regardless of health, disability, or body image concerns. This episode is a must-listen for anyone looking to overcome personal limitations and live a fulfilling, empowered life.

• Learn more about Lacey's Coaching
• Follow Lacey on Instagram
• Read Lacey’s Book
• Book an EmBRACE It Workshop
• Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.com
• Find more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.org
• Follow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis

Please leave us a review and help others find us!

Hosted by Lainie Ishbia and Estela Lugo.

Embrace It is produced by Launchpad 516 Studios.

Support the show

Send us a text

Join us for an inspiring episode of the Embrace It Podcast as we welcome the radiant Xian Horn, a true catalyst for inclusion. Xian, a joyful half-Asian woman with Cerebral Palsy, wears many hats: teacher, writer, speaker, beauty advocate, blogger, and Exemplar for the AT&T NYU Connect Ability Challenge towards creating Assistive Technology.

Named one of the 21 Leaders for the 21st Century by Women's eNews in 2017, Xian Horn's journey toward reconceptualizing leadership has left a profound impact. From companies like Viacom, and Target, to AXA Equitable, she's reshaping narratives using her testimony and mentoring prowess.

In this episode, we delve into Xian's mission to reshape our notions of self-esteem and collective purpose, particularly for women. Through her non-profit, Give Beauty Wings, she's championing empowerment for people with disabilities and marginalized communities.

Tune in as we explore Xian's remarkable journey, her tireless advocacy, and her vision for a more inclusive world.

Don't miss this insightful conversation on embracing diversity, fostering leadership, and the transformative power of self-love.

• Learn more about Xian Horn
• Follow Xian on Instagram
• Sign Xian’s Transportation Petition
• Book an EmBRACE It Workshop
• Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.com
• Find more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.org
• Follow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis

Please leave us a review and help others find us!

Hosted by Lainie Ishbia and Estela Lugo.

Embrace It is produced by Launchpad 516 Studios.

For sponsorships and media inquiries, drop an email to: embraceit@lp516.com

Subscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898

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Join us for an enlightening conversation with Alexa and Jacqueline Child, the dynamic duo behind Dateability, a revolutionary dating app designed to empower the disabled and chronically ill communities. Founded by sisters, Jacqueline's personal experience with discrimination and hurtful comments on mainstream dating apps due to her disability ignited a spark within them to create a platform that champions inclusivity and understanding.

In this podcast episode, we delve into Jacqueline and Alexa's journey, exploring the challenges they faced in the dating world and the inspiration behind Dateability. Jacqueline shares her firsthand encounters with discrimination and offensive behavior on traditional dating platforms, highlighting the urgent need for a space where individuals with disabilities can connect authentically without fear of judgment.

Through their shared vision, Jacqueline and Alexa are on a mission to revolutionize the social experiences of a population that has long been overlooked and marginalized. With Dateability, they're not just building a dating app; they're fostering a supportive community where everyone's unique journey is celebrated.

Tune in as we discuss the values driving Dateability, the obstacles they've overcome, and their dedication to making it the premier platform for the disabled and chronically ill communities.

• Learn about and download Dateability
• Follow Dateability on Instagram
• Book an EmBRACE It Workshop
• Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.com
• Find more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.org
• Follow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis

Please leave us a review and help others find us!

Hosted by Lainie Ishbia and Estela Lugo.

Embrace It is produced by Launchpad 516 Studios.

For sponsorships and media inquiries, drop an email to: embraceit@lp516.com

Subscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898

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In this heartfelt episode, join Lainie and Estela as they open up about their personal journeys in living with a disability. Delving into the depths of self-reflection, the duo shares an intimate list of insights they wish they could tell their younger selves. From navigating challenges to embracing self-love, this candid conversation unveils valuable lessons, offering a beacon of wisdom for anyone on a similar path. Tune in for a touching exploration of resilience, growth, and the empowering messages that transcend time.

• Book an EmBRACE It Workshop
• Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.com
• Find more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.org
• Follow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis

Please leave us a review and help others find us!

Hosted by Lainie Ishbia and Estela Lugo.

Embrace It is produced by Launchpad 516 Studios.

For sponsorships and media inquiries, drop an email to: embraceit@lp516.com

Subscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898

Support the show

Send us a text

In this amusing and heartfelt episode, we explore the pivotal moments that turned a troubled and disabled middle schooler with Tourette’s syndrome into an international comedian and Netflix personality! Join us as Pamela Rae Schuller blends her skills of storytelling and comedy with disability advocacy into this fun and insightful EmBrace It conversation!

• Follow Pamela on Instagram
• Watch Pamela’s TEDx Talk
• Watch Pamela on Netflix
• Book an EmBRACE It Workshop
• Looking for more great tips, hacks, and blog posts? Visit: Trend-Able.com
• Find more on Charcot-Marie-Tooth (CMT) and patient resources at: HNF-cure.org
• Follow us on IG! @embraceit_podcast | @trend.able | @cmtwegotthis

Please leave us a review and help others find us!

Hosted by Lainie Ishbia and Estela Lugo.

Embrace It is produced by Launchpad 516 Studios.

For sponsorships and media inquiries, drop an email to: embraceit@lp516.com

Subscribe to Embrace It with Lainie and Estela on Apple Podcasts and get notified of new episodes! https://podcasts.apple.com/us/podcast/embrace-it-with-lainie-estela-smashing-disability-stigmas/id1468364898

Support the show