Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

What questions have the MS community been asking in 2024? We took to social media and analysed our helpline enquiries to find out.

Dr Claire Winchester and Corinne from our helpline team take us through the topics and explore the available information, support and self-management strategies.

Plus, we cover some of the more unusual things that you’ve been asking about, like tattoos, Botox and lip fillers. Ready to find out more?

Listen now for trusted information, tips and more.

Show Notes

• MS Trust Helpline
• MS Trust Shop - Here you can download all MS Trust publications for free
• Supporting the MS Trust - information from the MS Trust
• MS Trust Facebook Group
• mstrust.org.uk/a-z/fatigue - MS Trust information about fatigue
• mstrust.org.uk/information-support/newly-diagnosed - MS Trust information for the newly diagnosed
• mstrust.org.uk/information-support/work-money-legal/working-life - MS Trust information about work and MS
• mstrust.org.uk/information-support/home-and-travel/equipment - MS Trust information about equipment
• mstrust.org.uk/a-z/botulinum-toxin-botox MS Trust information about botox
• mstrust.org.uk/a-z/mcdonald-criteria MS Trust information about about the McDonald's Criteria
• mstrust.org.uk/news/think-you-know-how-spot-uti - Think you can spot an UTI - info from the MS Trust

Call our free helpline on 0800 032 38 39 for practical information you can trust. Or email ask@mstrust.org.uk. We're here weekdays from 10am to 4pm, except bank holidays.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

Is public transport derailing your life? We caught up with Meg Barnett (Transport For All), Flora (MS Trust helpline), Richard Sprenger and Antoinette Mohamed on public transport tips, helpful information and all the latest resources.

“It’s just really complicated. I hate having medical appointments because it’s so difficult to get to them.” - Antoinette

Does this sound familiar? If public transport is derailing your life, you’re not alone.

Between all of the planning, symptom management, inaccessible stations and social interactions, public transport can feel like you’ve got a one-way ticket to exhaustion on the fatigue express.

In fact, 77% of people in our study reported feelings of isolation due to barriers in transport and travel.

That’s why we caught up with Meg Barnett from the charity Transport For All, Flora from the MS Trust helpline team, MS Trust Ambassador Richard Sprenger and regular MS Trust blogger Antoinette Mohamed.

Our podcast guests talk us through their public transport wins and the inevitable disaster journeys. Plus, we hear about helpful apps, journey planning tips and where to turn to when our travels go severely off-track.

Whilst we know that we can’t wave a magic wand and fix public transport for the MS community, this episode might just give you a little more confidence the next time you’re setting sail on an adventure.

Listen now for all of the latest trusted information and tips.

Episode Notes
Driving and Transport - info from MS Trust
mstrust.org.uk/information-support/home-and-travel/driving-and-public-transport
Life changing: getting around with MS - information from MS Trust mstrust.org.uk/news/life-changing-getting-around-ms
Transport for All - www.transportforall.org.uk
Passenger Assistance - https://passengerassistance.com/
Citymapper - travel planner app - https://citymapper.com/?lang=en
MS Trust Facebook Group

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

Are you wondering how to stay productive while managing MS? Perhaps you are looking for ways to disclose your diagnosis without derailing your career? Then join us as we delve into the topic of MS at work.

Hosts Nick and Helena explore the impact of Multiple Sclerosis in the workplace and share strategies for Bringing Your MS to Work.

We have a jam-packed show with four fantastic guests:

• Dr. Blanca de Dios Pérez, a postdoctoral Research Fellow at the University of Nottingham, who shares her research aimed at helping people with MS stay in the workforce for as long as they choose with the help of vocational rehab.
• Amy and Sam from the charity “MS Together” discuss their personal journeys with MS in the workplace and the supportive conversations they have been having within their community.
• Jane, recently diagnosed with MS, shares her experience of revealing her diagnosis at work,

Tune in to hear these stories and get some ideas in managing MS in your workplace. Let’s bring your MS to work!

Episode Notes

• MS Trust web page on Working life with MS: mstrust.org.uk/life-ms/your-finances/working-life
• Bring your MS To work Campaign mstrust.org.uk/get-involved/bring-your-ms-work - Fundraising Campaign from MS Trust
• MS Together mstogether.org/ - MS charity for young people with MS
• Volunteer at the MS Trust mstrust.org.uk/get-involved/volunteering
• Working life and MS mstrust.org.uk/information-support/podcasts/working-life-and-ms - Podcast episode about MS and your rights at work

Other work resources that might be useful

• MS Awareness Week webinar on work and MS: mstrust.org.uk/get-involved/ms-awareness-week/work-and-ms-webinar
• MS Trust web page on Working life with MS: mstrust.org.uk/life-ms/your-finances/working-life
• MS Trust web page on Legal advice: mstrust.org.uk/life-ms/your-finances/legal-advice
• MS Trust A-Z Equality Act: mstrust.org.uk/a-z/equality-act
• Law Centres offer legal advice, casework and representation: lawcentres.org.uk
• Citizens Advice: citizensadvice.org.uk/work/rights-at-work
• Access to work: gov.uk/access-to-work/apply
• Acas gives employees and employers free, impartial advice on workplace rights, rules and best practice: acas.org.uk/