In this episode we talk with two of Tennessee's most respected professionals in the field of deafblindness. We discuss state deafblind projects, the impacts of dual sensory loss and the new CVI Clinic at Vanderbilt Eye Institute. You won't want to miss it!

Suzanne Dinwiddie, M.Ed., COMS, CTVI, CEIM is a certified teacher of students who are blind/visually impaired (CTVI), an orientation and mobility instructor (COMS), an early childhood special education specialist, special education, and elementary education. Currently, Suzanne serves as the educational consultant for the CVI Clinic at Vanderbilt Eye Institute, providing technical assistance and assisting families, school systems, and teachers concerning the unique learning strategies for students with cerebral/cortical visual impairments (CVI) and adjunct professor for Vanderbilt University’s master’s program. Previously, Suzanne worked as the educational consultant for the Tennessee DeafBlind Project (TNDB), a federal grant associated with Vanderbilt’s Children Hospital in the Division of Developmental Pediatrics.

Danna Conn has served as the Project oordinator for the Tennessee DeafBlind Project for over ten years now. She provides coordination of the daily activities of the grant and the continued collaboration with agencies and individuals across the state to address system and child outcomes through evidence-based technical assistance, training, and consultation. She maintains the state's deafblind census, and she works to increase public awareness around deafblindness. She also speaks at many regional and national conferences and talks on topics all related to dual sensory loss. She previously worked as an early intervention specialist in North Carolina and in Italy.

Yvonne Neubert is a graduate of East Tennessee State University and has been a member of the National Federation of the Blind since 2012. In 2014, she completed the Partners in Policymaking state training. A trip to Washington, DC to take part in an NFB seminar sparked her involvement in legislative affairs. It was activism that prompted her to not only join the NFB but to become active in the organization. She now serves on the NFB’s board of directors, is President of the senior's division and is chair of Tennessee’s legislative committee. Yvonne is a leader and credits her team with successfully gaining support from a Tennessee U.S. congress member who became the first, in Tennessee, to co-sponsor a bill presented by the NFB. She has also volunteered at SPARK, a local tech training center for the disabled community and has worked as a broadcast journalist. Her hobbies are reading, songwriting and storytelling.

Stacy sat down with Yvonne recently for an episode of the BEST Together podcast. Listen as they discuss the power of advocacy and activism, specifically within the community of the blind.

Campbell Rutherford is a rising junior studying Applied Mathematics at Harvard University. Blind since birth, she is passionate about ensuring that blind individuals can access the resources necessary for them to succeed in school, the workplace, and life in general, particularly in the areas of science, technology, engineering, and mathematics (STEM). Before college, Campbell worked as both a website accessibility tester and an assistive technology instructor, specializing in teaching students to access and present mathematics materials, and she continues to take any opportunity she can to tell her story and educate others about the importance of assistive technology in the daily lives of people like her. In her free time, Campbell enjoys playing piano, reading, writing, and spending time with her family, friends, and six rescue cats.

Liza Rutherford is a choreographer from Dandridge, TN, and is the homeschool mom of two girls, Campbell and Harris, and wife to Mike. After a lengthy journey to get an accurate diagnosis for Campbell, suddenly the Rutherfords were immersed in the deep waters of acquiring services and an education for a braille reader in a rural Appalachian community with limited resources. After 3 years of Montessori School and 3 years of public school, they settled on homeschooling Campbell for grades 5 through 12. It was a fantastic 9 years of exploring, networking, and learning as a family, and ultimately led to Campbell now thriving in Cambridge, MA as an applied mathematics major at Harvard. In her free time, Liza enjoys reading, knitting, cooking, going to the theatre, and back-porch-sitting with her family in the hills of East Tennessee.

Liza and Campbell sat down with us recently to share their journey from diagnosis and early intervention to combatting low expectations in schools to their journey all the way to Harvard!

Leslie Jones is the Executive Director of the FMDG (Filomen M. D'Agostino Greenberg) Music School in New York City, a music school serving students of all ages with vision loss. Leslie holds a DMA from the University of Cincinnati College-Conservatory of Music, and an MM from the University of North Texas. She has served on the faculties of Ithaca College and Montana State University. A versatile musician herself, she enjoys playing chamber music and performs as a jazz pianist. She has been instrumental in developing an accessible music technology program within the Music School while expanding community outreach and visibility by establishing collaborations and partnerships with The Metropolitan Museum of Art, 92NY School of Music and Harkness Dance Center, National Dance Institute, among others. Leslie has served on the New York and Montana State Arts Councils, and has been appointed to the Advisory Board of the Performing Arts Division at Rowan University.

Christie Elliott, COMS, CATIS

Christie Elliott graduated from the University of Arkansas at Little Rock in 2015 with a Master of Arts in Rehabilitation of the Blind and began working as an Orientation and Mobility Specialist at the STAR Center, serving blind and visually impaired individuals from birth to end of life.

She earned a Graduate Certificate in Assistive Technology from Western Michigan University in 2022. Christie holds two ACVREP certifications: Certified Orientation and Mobility Specialist (COMS) and Certified Assistive Technology Instructional Specialist for the Blind and Visually Impaired (CATIS).

Christie has worked at the STAR Center since 2009, previously serving as a Job Skills Instructor for 6 years, teaching job skills to adults with disabilities.

Christie enjoys helping individuals who are blind or visually impaired to figure out what tools can help them realize their full potential in achieving independence for their daily lives.

Our podcast guest this month, Christina Clift, graduated from the University of Tennessee with a Bachelor’s degree in Communications and attended the University of Memphis for graduate school. Christina has worked at the Memphis Center for Independent Living as the Consumer Advocate since 2003. She has served as chair of the State Rehabilitation Council of Tennessee, and the Memphis Advisory Council for Citizens with Disabilities. Christina is also a founding board member of the TriState Adaptive Sports Association, and is a proud member of the National Federation of the Blind. Christina is a fierce advocate for those living with blindness and knows firsthand that access to assistive technology and other supports opens doors, eliminates barriers, and gives independence to those with disabilities. Listen this month as we discuss what independent living really means.

Caroline Aly is a Nashville-based educator with a background in non-profit leadership, private tutoring, and teaching in the exceptional education space. Caroline says that after continually observing inequity, profound limitations, and a lack of support for parents and/or caregivers of exceptional learners within the education community at large, she decided to launch her business, Carehack, to serve as a safe bridge across major gaps in a system often under-prepared to provide for the needs of exceptional learners. Caroline's experience and expertise leads the team at Carehack, a growing community and safe haven for parents of exceptional children to ask questions, receive resources and advocacy support, consult with experts, and implement personalized behavior systems at home. 

Mae Lane-Karnas is a 14-year-old diagnosed with CVI who loves braille, math, and art. Due to CVI, Mae has a host of visual challenges that cause her to function at the level of legal blindness, even though her visual acuities are typical. In the past year, Mae has co-presented to the Principals of Schools for the Blind and the Association for Education and Rehabilitation of the Blind (AER) on use of Nemeth code for middle school students with CVI. Mae co-organizes an ongoing CVI discussion group at Smith Kettlewell Eye Research Institute and serves on the board of the National Federation of the Blind of Vermont. Katie Lane-Karnas is Mae’s mother and the primary homeschooling parent to her two daughters in rural Vermont. When Mae was diagnosed with CVI two years ago, Katie began facilitating Mae’s learning in braille, Nemeth code, AT, O&M, and the ECC. Katie authored a paper, “A Case Study on CVI, Reading, and Braille,” that has been accepted for publication in 2024 by the Journal of Visual Impairment and Blindness on her family’s learnings from Mae’s experiences. Both Katie and Mae join us on this month’s episode of the BEST Together podcast to share their lived experiences with CVI.