Amplifying the Patient Journey

By: Practical Neurology
Listen for free

  • Summary

  • The heart of clinical practice is the patient. In this series, we speak with both providers and patients about the clinical journey with a neurologic condition, and what recent advances mean for patients, their providers, and caregivers.
    2024 Bryn Mawr Communications LLC
    Show More Show Less
Biological Sciences
Show More Show Less
activate_Holiday_promo_in_buybox_DT_T2
Episodes
  • Young-Onset ALS: Diagnosis and Research

    Young-Onset ALS: Diagnosis and Research
    Nov 8 2024
    In this episode, Gwen Petersen discusses her long journey to receiving an ALS diagnosis at age 32, her contributions to a Cytokinetics book project, and the importance of clinical trial participation. We are also joined by Merit Cudkowicz, MD, MSc, Head of the Department of Neurology, Chief of Neurology, and Director of the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital in Boston, MA who discusses the PLATFORM-ALS trial and the drugs currently in the clinical research and development pipeline.
    Show More Show Less
    20 mins
  • Rett Syndrome: Magnolia and Her Family's Experience.

    Rett Syndrome: Magnolia and Her Family's Experience.
    Oct 31 2024
    AJ Tesler shares the story of his daughter, Magnolia, who is living with Rett syndrome. As a parent and caregiver, AJ provides his perspective throughout the diagnostic and therapeutic journey for Rett syndrome and is joined by Rett syndrome expert Carey Fu, MD, Pediatric Neurologist at Vanderbilt University Medical Center in Nashville, TN.
    Show More Show Less
    23 mins
  • PD GENEration and Barriers to Parkinson Diagnosis - Part 2

    PD GENEration and Barriers to Parkinson Diagnosis - Part 2
    Aug 23 2024
    Richard Huckabee is a patient living with Parkinson disease and a Parkinson’s Foundation "Aware in Care" ambassador and research advocate. Mr. Huckabee is enrolled in the PD GENEration study, a national initiative offering no-cost genetic testing and counseling for people with Parkinson disease, and he discusses some of the barriers he faced in receiving a diagnosis of Parkinson disease.
    Show More Show Less
    18 mins

What listeners say about Amplifying the Patient Journey

Average customer ratings

Reviews - Please select the tabs below to change the source of reviews.

Audible.co.uk reviews

Amazon reviews
No Reviews are Available