Send us a text

In this solo stream of consciousness episode, I reflect on the unique challenges and joys that the holiday season brings for families navigating rare diseases and medical complexities. I share practical tips for managing expectations, creating meaningful traditions, and finding joy in the small moments. I'm here to offer encouragement for parents feeling the weight of the season, reminding them that connection and presence matter far more than perfection. Whether you’re scaling back traditions or adapting them entirely, this episode is a gentle reminder that the holidays can still hold magic, even when they look different.

Join the Conversation:
Have thoughts about today’s episode? Share your holiday tips, reflections, or just drop a note to connect! Send me a message or tag me on social media with your thoughts. Let’s navigate this season together, one moment at a time.

Don’t Forget:
If you enjoyed this episode, please take a moment to subscribe, leave a review, and share it with another parent who might need a little holiday encouragement. Your support means the world and helps us reach more families who need it most.

Listen to the TOP 3 episodes of 2024:
1. My Inner Debate on a Third Child and What I Have Come to Realize
2. Mini Ep: My EXCITING, BIG Announcement!
3. Talking About All the Things with The Rare Life's Madeline Cheney

Looking forward to seeing you all back here in 2025!

Join the Conversation:

Follow Confessions of a Rare Disease Mama on Instagram, TikTok, and Facebook. Share your thoughts on this episode and connect with our community. Be sure to follow us on social media and subscribe on our website for more episodes that bring you stories and insights from those who truly understand the rare disease journey.

Purchase my new inclusive children's book Soaring Together now available on Amazon and at Barnes and Noble

Get your FREE Positive Affirmations for the Medical Parent PDF here!

Buy your "Embracing the Rare" T-shirt & other merch!

Learn more about my children's fight with ASMD and donate to our cause