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The Sleeping Beauties

And Other Stories of Mystery Illness

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The Sleeping Beauties

By: Suzanne O'Sullivan
Narrated by: Suzanne O'Sullivan
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About this listen

Shortlisted for the Royal Society Science Book Prize.

'A study of diseases that we sometimes say are 'all in the mind', and an explanation of how unfair that characterisation is.' – Tom Whipple, The Times Books of the Year

'To compare any book to a Oliver Sacks is unfair, but this one lives up to it . . . I finished it feeling thrillingly unsettled, and wishing there was more.' – James McConnachie, Sunday Times

In Sweden, refugee children fall asleep for months and years at a time. In upstate New York, high school students develop contagious seizures. In the US Embassy in Cuba, employees complain of headaches and memory loss after hearing strange noises in the night.

These cases are some of the most remarkable diagnostic mysteries of the twenty-first century, as both doctors and scientists have struggled to explain them within the boundaries of medical science and – more crucially – to treat them. What unites them is that they are all examples of a particular type of psychosomatic illness: medical disorders that are influenced as much by the idiosyncratic aspects of individual cultures as they are by human biology.

Inspired by a poignant encounter with the sleeping refugee children of Sweden, Wellcome Prize-winning neurologist Suzanne O’Sullivan travels the world to visit other communities who have also been subject to outbreaks of so-called ‘mystery’ illnesses.

From a derelict post-Soviet mining town in Kazakhstan, to the Mosquito Coast of Nicaragua via an oil town in Texas, to the heart of the Maria Mountains in Colombia, O’Sullivan hears remarkable stories from a fascinating array of people, and attempts to unravel their complex meaning while asking the question: who gets to define what is and what isn’t an illness?

Reminiscent of the work of Oliver Sacks, Stephen Grosz and Henry Marsh, The Sleeping Beauties is a moving and unforgettable scientific investigation with a very human face.

Biological Sciences Medical Neuroscience & Neuropsychology Professionals & Academics Psychology Psychology & Mental Health Science Latin American

Critic reviews

O’Sullivan doesn’t offer easy answers. She just shows us, with wonderful compassion and the minimum of judgment, the ways in which people across the world have manifested symptoms that have helped them through – or beyond – painful situations . . . It is, in every sense, mind-blowing. (Helen Brown)
Neurologist Suzanne O'Sullivan takes us on a tour of puzzling and seemingly inexplicable illnesses, including a sleeping sickness that affects refugee children in Sweden, severe headaches afflicting embassy staff in Cuba and mass outbreaks of fainting among Colombian schoolgirls. It's utterly fascinating, and told with extraordinary compassion. (Alex Clark)
O'Sullivan travels the world collecting fascinating stories of culture-bound syndromes, which she relays with nuance and sensitivity. (Alice Robb)
A bracing read, a little like a cold shower on a hot summer’s day. (Marcus Berkmann)
The stories are remarkable. But no less remarkable is O'Sullivan's revelation of the way we all absorb cultural expectations of illness and reject or exhibit symptoms in response . . . Her enlightening and sympathetic book should be required reading for all doctors - and for all patients. (Wendy Moore)
To compare any book to a Sacks is unfair, but this one lives up to it. Not because it is alluringly freakish, but because it is so compassionate, and so driven by deep curiosity about the human psyche. I finished it feeling thrillingly unsettled, and wishing there was more. (James McConnachie)

By making social problems visible on the body, O’Sullivan believes, these conditions allow voiceless people to make
themselves heard. Perhaps this eloquent and convincing book will be the start of making people in authority listen, make change and help.

(Katy Guest)
O’Sullivan’s beautifully written book interweaves the stories of those afflicted in this way around the world, in a travelogue of illness that is ultimately a travelogue of our own irrational, suggestible minds . . . It is a measure of how effective O’Sullivan is at describing the dilemmas and difficulties of treating psychosomatic conditions that, by the end, a visit to a witch doctor begins to feel like the most sensible medical intervention in the book. (Tom Whipple)
Each case study peels back the rigid framework of modern medicine and demands that we reframe our understanding of what is and isn't illness. This is a progressive book that doesn't hold back on criticising the dogged diagnostic obsessions of Western medicine. (Lucy Kehoe)
No one doubts that there is something genuinely wrong with these children, yet medicine cannot locate it. O' Sullivan tours the clusters to see if she can do any better.
In this fascinating book, O’Sullivan makes a case for empathy.
In my view the best science writer around – a true descendant of Oliver Sacks. (Sathnam Sanghera, author of The Boy with the Topknot)
All stars
Most relevant
A brilliant book which explores people’s stories and how they must be seen in the context of their community and how western medicine often fails to allow for this risking over diagnosis and over medicalisation

The importance of community and listening

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Modern Neurology explained to an old doctor who would have been frustrated and short of temper with these patients!

New Neurology or Old Medicine

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Beautifully read by the author, this book is a fascinating exploration of our physical, cultural, societal & psychological responses to illness and the impact each aspect has on our understanding of & recovery from it.

Fascinating

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I liked the book as entertainment. It is easy listen for long autumn/winter days like this but I'm not totally in agreement with this hypothesis. I still believe there definitely are environmental factors causing the Kaluch village in Kazakhstan to fall asleep. I didn't find any informations of Krasnigrod as mentioned in this book. I might not pay attention completely and that's another point there. The book could be better if it was shorter. I got bored after about 5 hours into it. The last three hours I listened when cooking because it wasn't even worth it to listen to it while I try relax in bed before sleep. I wanted that to be finally over. There are few but very few cases of people who have conversion disorder here and it is not properly described. it lack depth on description of these non epileptic convulsions for a general listener and not a medical doctor. So it's interesting but it will leave you with a research project for later. I can't give it 5 stars for the lack of informations as I though I'm buying something much more comprehensive as the length suggested so I'm little disappointed after all. And I must admit that it's personal why I don't agree on her hypothesis because I had these symptoms myself after they made new insulation on the school building. I slept almost constantly and I had abnormal findings on eeg but the doctors didn't know what it was because it wasn't typical epilepsy. my incranial pressure was also elevated.i still have problems 13 years later but I have realised one connection recently due to this book while I do have emotional baggage I also got suspicion after watching YouTube video on the matter in Kazakhstan it really has to do with the building. I come from post Soviet country. secondly girl in my class died suddenly while celebrating the graduation on graduation party toilet. The school was shocked. Parents were shocked and doctors found no specific cause. She also had brain swelling but I consider myself lucky I left the school once these symptoms begin and I got better but it's slow progress. it gets worse and better. I'm hoping to get sleep study soon. I was very unhappy with my devotion to quit the school until now but now it put me to peace I did right thing and there will be doctors who will say it's coincidence but I realised most medical doctors know very little about toxins in the environment as this particular specialist seems too.

Still a sceptic

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loved it, in particular last chapter on what is normal
, well read by author

fascinating book

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